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Personal Stories of Individuals Living with Kennedy's Disease (SBMA)

 

Each of the following individuals live with Spinal Bulbar muscular Atrophy (Kennedy's Disease). They have been kind enough to share their personal stories for others so that they can understand the disease on a more personal level. We thank these individuals for their information.

  • Mosie Moseremous, Born 1962 - Australia
  • Paul France, Born 1968 - England
  • Terry Waite, - CA, USA
  • Bill Basham, Born 1954 - IN, USA
  • Ed Meyertholen, Born 1954 - TX, USA
  • Claus-Peter Czaya, Born 1951 - Germany
  • Robert Cotton, Born 1951 - England
  • Ted Abbott, Born 1950 - CA, USA
  • Marek Babik, Born 1950 - Poland 
  • Brian Miller, Born 1950 - NY, USA
  • Fernando Gines Ortega, Born 1948 - Spain
  • Len Janicki, Born 1948 - NV, USA
  • Jerry Hamblen, Born 1943 - FL, USA
  • Mal Kelly, Born 1942 - Australia
  • Hiliary Walklett, Born 1940 - England
  • Roger Stoufer, Born 1939 - MN, USA
  • John Ireland, Born 1939 - England
  • Alistair Fyfe, Born 1937 - Australia
  • Don Merriam, Born 1937 - Canada
  • David Atkinson Sr. Born 1936 - NC, USA
  • Vern Quimby, Born 1933 - CA, USA
  • Charles Rannells, Born 1927 - WV, USA

 

From a Family and Friends Point-of-View:

  • Susanne Waite - CA, USA
  • Ronni Bartlett - MI, USA

 

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Moser Moseremous

Kennedy's Disease Association

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Kennedy's Disease Association
P.O. Box 1105
Coarsegold, CA 93614-1105

Telephone (855) 532-7762
Outside U.S. (734) 288-5580
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