KDA's Mission
The KDA is about to celebrate its 25th year. The KDA's mission has remained the same. To inform, support, educate, fund research and find a cure for Kennedy's Disease. Help us find a cure. Donate today
News & Events
2025 Grants and Fellowship Announcement
The Kennedy's Disease Association is pleased to announce its 2025 SBMA research grants and fellowship programs. Through these programs, we seek to further understand the pathological mechanisms of and possible treatments for Kennedy's disease. For details and proposal instructions, click here. The submission deadline for both programs is Monday, June 2, 2025. Awards will be announced in September after a review by the KDA's Scientific Review Board.
Rare Disease Day - February 28, 2025
Observed annually on the last day of February. Rare Disease Day is a global movement dedicated to raising awareness and building support for those affected by a rare disease. Help the KDA find a cure for Kennedy's Disease by partnering with the KDA to hold a local fundraiser. Together, we can find a cure! For ideas or to let us know about your fundraiser, click here.
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KDA held its annual conference on November 2-4 in Orlando, FL. Approximately 250 patients, family members, clinicians, and researchers participated either in person or online. Four videos of the conference are available to watch. To watch these & other videos on KD, click here.
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"Functional Outcome Measures to Optimize Drug Development in SBMA". (Results From a Meta-Analysis of the Global SBMA Dataset). To read the paper click here.
More News
The KDA has provided over $3,000,000 for KD research to find a cure. However, we still have miles to go. Scientific research is expensive, and we need to increase our fundraising. To do this, we need your help. We’re not asking for money. What we really need is your time and effort. If you have a couple of hours a month we urge you to volunteer. To volunteer, please contact us.
