Finding Doctors Familiar with Kennedy's Disease
Finding a doctor familiar with Kennedy's Disease (KD) can be challenging. The following doctors' names were given to us by either individuals who have Kennedy's Disease and have utilized their services or from medical professionals who have recommended a doctor to us because they felt that this doctor was familiar with KD. The Kennedy's Disease Association cannot recommend physicians. There are many doctors who are not on this list that treat KD and have knowledge of KD. Important: If you have a doctor that you wish to recommend, please send the information to Contact the KDA.
Men with KD have also had success finding help at MDA Care Centers located across the United States. To find a MDA Care Center in your area click here.
In addition, Men with KD have had success finding help at an ALS Care Clinic. KD is one of few such diseases for which there is a positive DNA Test. This fact enables a Neurologist working at an ALS Clinic to narrow down an ALS diagnosis. To find an ALS Care Clinic in your area click here and use the “The ALS Association & Clinic Locator”.
Doctors Familiar with Kennedy's Disease
United States & Other Countries
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UNITED STATES
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Arizona
Shafeeg Lahda
240 W Thomas Rd, Suite 101
Phoenix, AZ 85013
(602) 406 6262David S. Saperstein, M.D.
1010 E McDowell Rd, Suite 101
Phonex AZ 85006
(602) 900 9404 -
California
Jonathan S. Katz, M.D.
1100 Van Ness Ave, Fl6
San Fancisco 94109
(415) 600 3604Tahseen Mozaffar, MD
200 S. Manchester Ave, Ste 110
Orange, CA 92868
(714) 456 2332Manisha K. Korb, MD
UCI Health & Neuromuscular Center
1640 Newport Blvd
Costa Mesa, CA 92627
(949) 456 5997John W. Day, MD, PhD
Neelam Goyal, MD
Jacinda Sampson, Neurogenticist
Yuen So, MD, PhD
Stanford Neuroscience Health Center
Dept Neurology & Neurological Sciences
213 Quarry Road
Palo Alto, CA 94305
(650) 723 6469Dominic Ferrey, M.D.
UCSD
200 West Harbor Dr., 3rd Floor Ste 1B
San Diego, CA 92103
(619) 543 3500 -
Florida
Jaime Gierbolini, MD
10141 Big Bend RoadSuite 206
Riverview, FL 33578
(813) 397-1274Rafael Miguel Rodriguez, MD
401 N Parsons Ave
Brandon, FL 33510-4538
(813) 653-2775 -
Illinois
Robert Sufit, M.D.
259 E Erie St, Ste 19-100
Chicago, IL 60611
(312) 695 7950Erik P Pioro, MD, PhD
259 E Erie St, Ste 19-100
Chicago, IL 60611
(312) 695 7950 -
Indiana
David A. Josephson, M.D.
8402 Harcourt Rd, Ste 615
Indianapolis, IN 46260
(317) 806 6991 -
Maryland
Abdullah AlQahtani, M.D., M.P.H.
601 N. Caroline St.
5th Floor
Baltimore, MD 21287
(410) 955-9441 -
Massachusetts
Anthony Amato, M.D.
75 Francis Street, Boston, MA 02115
(617) 732 7432Dider Cross, M.D.
1 Hawthorne Place, Ste 105
Boston, MA 02114
(617) 720 0030 -
Missouri
Alan Pestronk, M.D.
4921 Parkview Place, Suite 6C
St. Louis, MO 63110
(314) 362 6981 -
Nevada
Charles E Kamen, M.D.
2020 Wellness Way, Suite #300
Las Vegas, NV 89106
(702) 432 2233 -
New York
Stephen Scelsa, MD
Mount Sinai Hospital
10 Union Square East, Suite 5D
New York, NY 10003
(212) 844 8490David M Simpson, MD
Neurology Faculty Practice Associates
1468 Madison Avenue,
Annenberg 2nd Floor,
New York,
NY, 10029
(212) 241-8748 -
North Carolina
James B Caress, MD,
Wake Forest Baptist Health
Medical Center Boulevard
Winston Salem, NC 27157
(336) 716 4101 -
Ohio
Hani Kushlaf, M.D.
Robert W. Neel, MD
Jacqueline Janecek, MD
Long Davalos, MD
3113 Bellevue Ave
Cincinnati, OH 45219
(513) 475 8730Jerry R. Mendell, M.D.
700 Childrens Dr
Columbus, OH 43210
(614) 722 2715 -
Pennyslvania
Goran Rakocevic, M.D.
909 Walnut Street, Ste 200
Philadelphia, PA 19107
(215) 955 4087 -
South Carolina
Sarah Breevoort MD, PhD
Department of Neurology and Orthopedics, Medical University of South Carolina
96 Jonathan Lucas St
Ste 301 MSC 606
Charleston, SC 29425
(843) 792-3223 -
Tennesse
Joshua P. Alpers, M.D.
979 E 3rd St, Ste C-830
Chattanooga, TN 37403
(423) 778 9001 -
Texas
Daragh Heitzman, M.D.
6080 North Central Expressway
Dallas, TX 75206
(214) 827 3610 -
Utah
Dr. David Renner, M.D.
175 S Medical
Salt Lake City, Utah 84108
(801) 585 5405 -
Washington
Peter J. Struck, M.D.
1400 E. Kincaid Street
Mount Vernon, WA 98274
(360) 428 2500 -
OTHER COUNTRIES
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Australia
Garth Nicholson, M.D.
Concord Hospital, University of Sidney
Sidney, Australia
Tel: 61 2 9767 6796Professor Con Yiannikas,
Inner West Neurology, Suite 3a, Level 1,
1-17 Elsie Street,
Burwood,
NSW 2134
Tel.: 02-9747 2688 -
Canada
Dr. Kerri Schellenberg
ALS/MND Clinic – Saskatoon City Hospital
7th floor, 701 Queen Street
Saskatoon, SK, S7K 0M7
Tel: 1-306-655-7742ALS Clinic in Calgary
4448 Front Street SE Room 510123
Calgary, Alberta T3M 1M4
Tel: 1-403-956-3468Men with KD have had success finding help at ALS Care Clinics. KD is one of few such diseases for which there is a positive DNA Test. To find an ALS Canada Care Clinic, use the ALS Association & Clinic Locator by clicking here.
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South Korea
Department of Neurology
Seoul National University Hospital
28 Yongon-Dong, Chongno-Gu, Seoul 110-744, Korea
82-2-2072-2237 -
Sweden
Lars-Olov Ronnevi, M.D.
Head of Neurology, Karolinska University Hospital
Stockholm, Sweden
468-51775571 -
Philippines
Raymond L. Rosales, M.D.
University of Santo Tomas Hospital
Sampaloc , Manila, Metro Manila
(632) 7313001 -
United Kingdom
Adrian J. Wills, M.D.
Queen's Medical Centre, University Hospital NHS Trust,
Nottingham, NG7 2UH
0115 924 9924Angela F Brady, M.D.
North West London Hospitals NHS Trust,Watford Road,
Harrow, HA1 3UJ
020 8869 2795Dr. Pietro Fratta, M.D.
Queen Square London WC1N 3BG
020 3448 3111Kevin Talbot, M.D.
Headington Oxford OX3 9DU
01865 234829
