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Living with KD

KDA Conferences and Educational Symposium

2023 London International Kennedy Disease Joint Conference

KD-UK and the University College of London (UCL) hosted a four-day international conference on Kennedy's Disease in early November 2023. The first two days were patient-focused and included updates on research, clinical trials, and presentations from UCL experts on neuromuscular diseases. The third and fourth days were devoted to scientific presentations by and for KD researchers. KDA provided sponsorship support for both conferences.

The first two days were recorded. Day One included clinical descriptions of KD, ongoing research in UK KD labs, presentations by patient advocacy groups, and a breakout session for KD men. You can listen to day one's recording by clicking here. Day Two included presentations on respiratory and bulbar management, physical activity, mobility and home adaptations for KD patients, and the genetics of Kennedy's Disease. The second day also included updates on clinical trials, a researcher round table chaired by Dr. Fischbeck, and a keynote address on Huntington's Disease. You can listen to day two's recording by clicking here.

The patient days and scientific conference were well-attended, including several KDA members from the U.S.  KDA would like to thank UCL and KD-UK for an informative and productive conference.

Day One's recording

Day Two's recording

Terry Thompson
Kennedy's Disease Association

Past Conferences

The 2022 KDA Conference was held on November 9 -11 at the Holiday Inn Bayside in San Diego and virtually on Zoom. The KDA board would like to thank everyone who attended, presented and planned this event to make it a huge success. Agenda, click here.

Thank you to all the presenters and participants who made the 2021 KDA Conference a huge success. The virtual format allowed us to reach many more people in a much greater geographical area, and the quality of the talks were outstanding. Conference Agenda, click here.

Conference Dates: Wednesday, October 14th & Thursday, October 15th. Agenda, click here. To view the Q&A from the conference, click here.

Below are links to a few videos featuring some of the speakers that presented at the 2020 KDA Conference. 

  • Luca Zampedri, University College London, presents results of a KD patient survey "Priorities in Managing KD Symptoms" that he conducted prior to the KDA/KD-UK joint conference in 2020. To view the video, click here.
  • Physical Therapist Joseph Shrader from the NIH presented exercise recommendations for people with Kennedy's disease. To watch the videos. Click here

The 2019 KDA Conference, November 13-15 at the Rosen Plaza Hotel, Orlando, FL. To view the conference agenda, click here. To view photo's, go to our Facebook page by clicking here.

The 2018 KDA Conference, October 31-November 2 in San Diego, CA. To view the conference agenda, click here.

2018 KDA Research Presentations


“Caucusing For A Cure"

Holiday Inn in Old Town, Alexandria, Virginia (USA)

November 8th - 10th, 2017 

To view the conference agenda, click here.



Holiday Inn Bayside, San Diego, CA (USA)

November 9 - 11, 2016  

To view the conference agenda, click here.


“The answer may be Blowing in the wind”

Holiday Inn Express & Suites, Chicago (USA)

October 14 - 16, 2015

To view the conference agenda, click here.


“Today's Dream....Tomorrows reality”

Holiday Inn - Alexandria, Virginia (USA)

To view the conference agenda, click here.


“It’s a Jungle out There: Together, the KDA Family is Strong”

Holiday Inn - Bayside, San Diego, California (USA)

November 6-8, 2013

To view the conference agenda, click here.


"New Possibilities, New Friends, New Orleans"

Harrah's - New Orleans, Louisiana (USA)

October 10-12, 2012

To view the conference agenda, click here.


"Sex, Drugs and Helpful Hints"

Bowie, Maryland (USA) - at the Comfort Inn & Conference Center

November 9 - 11th, 2011

To view the conference agenda, click here.


"Closer than ever before"

The Ten Year Anniversary of the KDA

San Diego, CA (USA) - at the Holiday Inn - Bayside

November 10-12, 2010


"Working together to find a cure"  (connecting the dots.....)

Join us in Baltimore MD (USA) - at the Marriott Baltimore/Washington Int’l Airport

KDA Conference & Symposium

November 19-21, 2008


"An Eye on Tomorrow"

Las Vegas, NV (USA) -  at the Golden Nugget Hotel Downtown

November 6-8, 2007


"A Reason for Hope"

Atlanta, GA (USA) -  at the Holiday Inn Downtown

October 11-13, 2006


"Edge of Discovery"

San Diego -  at the Holiday Inn Select

October 20-22, 2004


"Hope for the Future"

New Orleans at the Renaissance Arts Hotel for

November 4-7, 2003


"Reaching for the Stars"

The 2002 KDA Conference & Symposium


The Families of SMA donated room space for the KDA to have a meeting June 21-24, 2001 in Chicago, Illinois

We deeply thank Families of SMA for their support of Kennedy's Disease allowing us to "piggyback" with their conference