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Our Mission

The Kennedy's Disease Association's mission is to inform, support, educate, fund research and find a cure for Kennedy's Disease. Get Involved


News & Events

Register for the 2023 KDA Global Conference!

University College London and KD-UK are organizing the first ever London International Kennedy Disease Conference. The conference will be held on November 4 and will incorporate the 2023 KDA annual conference. The first two days of the conference  will focus on people living with Kennedy Disease, carriers, carers. The afternoon of Day 2 will focus on current research. For more information and to register for the conference, click here.

Kennedy's Disease Management & Patient Reports

The Kennedy's Disease Association has just added two reports that focus on living life with Kennedy's Disease. The "Voice of the Patient" report summarizes a series of in-person and recorded interviews with individuals living with KD, their caregivers and family members. The "French Protocol for KD Diagnostics & Management Report" provides diagnostic and management recommendations and guidelines for patients with KD and general practitioners. To access these reports, click here.

More News

A combination approach of increasing the SIRT3 protein and inhibiting PARPs (poly-ADP ribose polymerase) helps rescue motor endurance of mice modeling the neuromuscular disease spinal bulbar and muscular atrophy also known as Kennedy's disease, according to a new study by Philadelphia College of Osteopathic Medicine (PCOM) researchers.

Researchers at Nagoya University in Japan developed and conducted this survey and are inviting KDA members to participate to allow for a cross-cultural comparison of KD. Upon completion, this research will be published to further the understanding of SBMA transmission among families, improve public knowledge and understanding of SBMA, and to build a foundation for communications between patients and researchers.