KDA's Mission
The KDA is about to celebrate its 25th year. The KDA's mission has remained the same. To inform, support, educate, fund research and find a cure for Kennedy's Disease. Help us find a cure. Donate today
News & Events
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The KDA recently awarded $100,000 grants to two teams of researchers who participated in the 2023 SBMA Research Workshop held at the Banbury Center in New York. The team of Dr. Al La Spada from the University of California, Irvine, and Mina Gouti, PhD, from the Max Delbruck Center for Molecular Medicine in Berlin will study the question of “How does skeletal muscle expression of mutant AR result in motor neuron degeneration in SBMA?” The team of Helen Miranda, PhD, and Ashleigh Schaffer, PhD, of the Department of Genome Sciences at Case Western Reserve University in Cleveland will investigate “Gene expression, regulation by AR with different CAG repeat sizes in hiPSC-derived neuromuscular junctions." Photo courtesy of Banbury Center. For more information, click here.
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Oxford University Press just published a paper on "Precise editing of pathogenic nucleotide repeat expansions in iPSCs using paired prime editor" To read the paper's abstract click here.
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On May 1, the KDA joined with members at the National Institute of Neurological Disorders to plant a tree on the NIH campus honoring the research and achievements of Dr. Fischbeck. The tree celebrates the distinguished career of Fischbeck who dedicated his career to advancing the understanding and treatment of hereditary neurological and neuromuscular diseases, like Kennedy’s disease. To learn more click here.
More News
A 2023 research article from researchers in Italy contains a graphic about the various therapies (like AJ201) that are or have been tried to deal with the toxic Androgen Receptor in Kennedy's Disease.
Professor Diane Merry of Thomas Jefferson University and a member of KDA's Scientific Review Board, received the prestigious Javits award for 2024.
