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The KDA's mission is to inform, support, educate, fund research, and find a cure for Kennedy's Disease |
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Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50.
The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts.
It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments.
It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers.
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SAVE THE DATE - 2019 KDA Conference
November 13, 2019 - November 15, 2019. Orlando, Florida
The 2018 Kennedy's Disease Conference research presentations and photos have been added to the website. To view, click here.
The NIH (National Institutes of Health) is collecting DNA samples for a KD study. They are looking for genetic markers that impact the progression of KD and our quality of life. If you have been diagnosed with Kennedy's Disease, please contact Angela Kokkinis at This email address is being protected from spambots. You need JavaScript enabled to view it. and she will send you a saliva collection kit.
The Living with Kennedy's Disease Blog