Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"The KDA is an excellent group of caring and dedicated members that are always there if more support and hope is needed."

KDAlogo

The KDA's mission is to inform, support, educate, fund research, and find a cure for Kennedy's Disease 

facebook-findus

Main Menu

Frequently Used Links

What is Kennedy's Disease

DNA Test for KD

Surgery Concerns- Anesthetics

Doctors Familiar with KD

Clinical Trials

Donate to the KDA

Frequently Asked Questions

KDA Forum

What's New

 

Visitor Counter

4866191

 

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50.

read more

 

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts.

read more

 

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments.

read more

 

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers.

read more

 
 
DonateNowbuttonpng


Whatsnew-button

Updateyourcontactinformationbutton

WaystofindaCbutton

 

button join-the-kda-today

Home

Welcome

button first-time-visitor

KDA Logo 152x91

KDAnews

2019KDA banner V8 white

2019 KDA Conference - Information. Registration. 

Draft Agenda.

    •  

    SBMA Patients are More Likely to be Affected by Metabolic Disorders, Heart and Liver Disease. To view the study, click here.

    • New kennedy's Disease Research - Muscle and not neuronal biomarkers correlate with severity in spinal and bulbar muscular atrophy. To learn more, click here. 

    • Efficacy and safety of leuprorelin acetate for subjects with spinal and bulbar muscular atrophy: pooled analyses of two randomized-controlled trials. To learn more, click here.

    • The NIH (National Institutes of Health) is collecting DNA samples for a KD study. They are looking for genetic markers that impact the progression of KD and our quality of life. If you have been diagnosed with Kennedy's Disease, please contact Angela Kokkinis at This email address is being protected from spambots. You need JavaScript enabled to view it. and she will send you a saliva collection kit.

    •  Living with KD Logo medium

    The Living with Kennedy's Disease Blog