COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community

Date: January 15, 2021. Time: 2:00 - 2:45pm ET. The National Organization for Rare Disorders (NORD), along with The ALS Association, Cystic Fibrosis Foundation and Muscular Dystrophy Association, is pleased to host a special webinar with leaders from the US Food and Drug Administration (FDA) and the Centers for Disease Control (CDC) to discuss the COVID-19 vaccines with the rare disease community. FDA recently granted Emergency Use Authorization (EUA) for the Pfizer and Moderna COVID-19 vaccines. To register, click here. 

2020 Kennedy's Disease Virual Conference Videos

We are pleased to present a few videos featuring some of the speakers.that presented at the 2020 KDA Conference. To view the videos, cliick on the links below.

• Conference Intro and KD-101: https://youtu.be/SIn9iKmFjWM
• Day One Conference Summary:  https://youtu.be/m_jkxAgGB4g

Here is a link to the Q&A document which is a compilation of the questions for the presenters as the seminar progressed. 

Making Everyday Life Easier: Adaptive Equipment and Recommendations. The Muscular Dystrophy Association has placed on YouTube their 2020 On-Demand Specialty Topic Presentations. The Making Everyday Life Easier: Adaptive Equipment and Recommendations by Dr. Kelly Casey who has practiced OT for 15 years at John Hopkins Hospital. The recommendations she has is relevant to anyone with Kennedys Disease who is looking for adaptive equipment to make life easier. To watch the YouTube video, click here. 

 Last quarter. Thanks to all our Amazon Smile shoppers. The Kennedy's Disease Association received a donation of $451.68 from Amazon to help us find a cure for Kennedys Disease. The KDA Board would like to thank everyone you has shopped with Amazon Smile and has made a donation to the Kennedys Disease Association. We wish you and your family a happy and healthy New Year.