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2019 KDA Conference - Information. Registration.

 2019 Kennedy's Disease Research Grant Proposal Announcement 

The Kennedy's Disease Association (KDA) is planning to fund one or more research grants this fall to further the understanding of the pathological mechanisms of Kennedy's Disease. Applications from junior investigators and from senior post-doctoral fellows are encouraged. 

The KDA will be offering two levels of funding.  For independent investigators (e.g. assistant professors, etc.), grants will be funding up to $75,000.  For postdoctoral fellows/senior trainees, grants will be funding for up to $50,000.  For the latter, please include a letter of support from your mentor as a supplement to your application. Your proposals must be received by Friday, July 13, 2019. For more information, click here.

The European Neuro Muscular Centre lay report "Towards a European Unifying Lab for Kennedy's Disease" was published. The purpose of the lay report is to share information on the workshop with the lay community, i.e. the patients and their representatives.To view the report, click here.

New kennedy's Disease Research - Muscle and not neuronal biomarkers correlate with severity in spinal and bulbar muscular atrophy. To learn more, click here.

The NIH (National Institutes of Health) is collecting DNA samples for a KD study. They are looking for genetic markers that impact the progression of KD and our quality of life. If you have been diagnosed with Kennedy's Disease, please contact Angela Kokkinis at This email address is being protected from spambots. You need JavaScript enabled to view it. and she will send you a saliva collection kit.

The Living with Kennedy's Disease Blog