The Kennedy’s Disease Association (KDA) has identified several resources to help individuals and their families understand and live with this rare neurological disorder.
- Exercises
- YouTube videos
- KDA Brochure
- SMBA Explained - MDA Website
- Wikipedia - Kennedy's Disease
- Living with Kennedy’s Disease Blog has articles related to living with Kennedy’s Disease, research, and personal stories. In addition, the blog contains plenty of resources related to Kennedy's Disease. Due to Bruce Gaughran's death, the blog is no longer updated but this doesn't take away the amount of helpful information it contains.
- National Institute of Neurological Disorders Kennedy's Disease Page
- Understanding Kennedy's Disease - Dr. Cynthia Jordan
- Information for people with or affected by Kennedy's Disease - MNDA
- Kennedy Disease 101 - Ed Meyertholen, PhD
- The KDA is on Facebook provides association and personal news as well as updates and links to information of interest.
