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KDA News & Newsletters

This year, in addition to funding our annual grants and fellowships programs, the KDA provided $5,000 for scholarships to allow researchers to attend the 2023 Gordon Conference on “CAG Triplet Repeat Disorders” to be held in June in Vermont. This conference is part of the Gordon Research Conferences, an internationally recognized program for scientists to present and discuss new research in many fields. The Vermont conference will focus on SBMA in addition to related, CAG repeat diseases such as Huntington’s disease. Conference attendees will hear presentations from senior SBMA researchers and have a chance to participate in discussions about potential treatments.

The KDA’s Board of Directors has approved the following goals for 2023

We need your help! We’ve heard from patients and researchers about the need for a patient registry for Kennedy’s Disease also known as Spinal and Bulbar Muscular Atrophy - SBMA. We’re pleased to announce that the KD/SBMA registry is now ready for your data!