Featured Videos
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Dr. Fischbeck summarizes Kennedy's Disease and possible treatments during an RDR conference in May, 2015
Research & Clinical Trials
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Dr. Montie discusses her research on Kennedy's Disease at PCOM, Jan, 2016
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Dr. Grunseich discusses Kennedy's Disease clinical trials at the NIH, Bethesda, MD
KDA Conferences
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2020 KDA Virtual Conference - PT Joe Shrader from the NIH presented exercise recommendations for people with KD.
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2020 KDA Virtual Conference - Luca Zampedri presented results of a KD patient survey "Priorities in Managing KD Symptoms"
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Dr. Beitel talks about animal KD models during 2012 KDA Conference in New Orleans
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Dr. Beitel talks about animal KD models during 2012 KDA Conference in New Orleans
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Dr. Meyertholen explains KD for a layperson during 2012 KDA Conference in New Orleans
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Dr. Meyertholen explains KD for a layperson during 2012 KDA Conference in New Orleans
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Dr. Meyertholen explains KD for a layperson during 2012 KDA Conference in New Orleans
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Sex and all that Jazz: Dr. Romero Sexual disfunction issues for KD men and women. 2012 KDA Conference.
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Sex and all that Jazz: Dr. Romero Sexual disfunction issues for KD men and women. 2012 KDA Conference.
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Dr. Pennuto explains IGF-1/AKT Signaling in SBMA 2012 KDA Conference in New Orleans.
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Re-Visiting KD Free Children - by Cliff Johnston 2012 KDA Conference in New Orleans
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Dr. Poletti explains Small Heat Shock Proteins in SBMA 2012 KDA Conference in New Orleans
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10 Years After - Dr. Meyertholen talks about the KDA and KD Research 2010 KDA Conference in San Diego, CA
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Kennedy's Disease-Free Children through IVF 2010 KDA Conference in San Diego, CA
Personal Stories
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Rare Disease Awareness and Kennedy’s Disease
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KD and the Waites
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Treatment Diary of Mr. Mattheis
Other KD YouTube Videos
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A new handle on Kennedy's Disease IRB Barcelona 2010 Annual Report
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The UK's First Kennedy's Disease Clinic - 20116
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Hand tremor, tongue and perioral fasciculation in a patient with Kennedy disease
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Biologist Neville Sanjana explains one concept in 5 levels of Difficulty - CRISPR