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Living with KD

Videos on Kennedy's Disease

Featured Videos

  • Dr. Fischbeck summarizes Kennedy's Disease and possible treatments during an RDR conference in May, 2015

Research & Clinical Trials

  • Dr. Montie discusses her research on Kennedy's Disease at PCOM, Jan, 2016

  • Dr. Grunseich discusses Kennedy's Disease clinical trials at the NIH, Bethesda, MD

KDA Conferences

  • 2020 KDA Virtual Conference - PT Joe Shrader from the NIH presented exercise recommendations for people with KD.

  • 2020 KDA Virtual Conference - Luca Zampedri presented results of a KD patient survey "Priorities in Managing KD Symptoms"

  • Dr. Beitel talks about animal KD models during 2012 KDA Conference in New Orleans

  • Dr. Beitel talks about animal KD models during 2012 KDA Conference in New Orleans

  • Dr. Meyertholen explains KD for a layperson during 2012 KDA Conference in New Orleans

  • Dr. Meyertholen explains KD for a layperson during 2012 KDA Conference in New Orleans

  • Dr. Meyertholen explains KD for a layperson during 2012 KDA Conference in New Orleans

  • Sex and all that Jazz: Dr. Romero Sexual disfunction issues for KD men and women. 2012 KDA Conference.

  • Sex and all that Jazz: Dr. Romero Sexual disfunction issues for KD men and women. 2012 KDA Conference.

  • Dr. Pennuto explains IGF-1/AKT Signaling in SBMA 2012 KDA Conference in New Orleans.

  • Re-Visiting KD Free Children - by Cliff Johnston 2012 KDA Conference in New Orleans

  • Dr. Poletti explains Small Heat Shock Proteins in SBMA 2012 KDA Conference in New Orleans

  • 10 Years After - Dr. Meyertholen talks about the KDA and KD Research 2010 KDA Conference in San Diego, CA

  • Kennedy's Disease-Free Children through IVF 2010 KDA Conference in San Diego, CA

Personal Stories

Other KD YouTube Videos

  • A new handle on Kennedy's Disease IRB Barcelona 2010 Annual Report

  • The UK's First Kennedy's Disease Clinic - 20116

  • Hand tremor, tongue and perioral fasciculation in a patient with Kennedy disease

  • Biologist Neville Sanjana explains one concept in 5 levels of Difficulty - CRISPR

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