KDA Conferences and Educational Symposiums

Conference Dates: Wednesday, October 14th & Thursday, October 15th. Agenda, click here. To view the Q&A from the confernce, click here.

Below are links to a few videos featuring some of the speakers that presented at the 2020 KDA Conference.

Conference Intro and KD-101: https://youtu.be/SIn9iKmFjWM
Day One Conference Summary: https://youtu.be/m_jkxAgGB4g
Luca Zampedri, University College London, presents results of a KD patient survey "Priorities in Managing KD Symptoms" that he conducted prior to the KDA/KD-UK joint conference in 2020. To view the video, click here.
Physical Therapist Joseph Shrader from the NIH presented exercise recomendations for people with Kennedy's disease. To watch the videos. Click here.

The 2019 KDA Conference, November 13-15 at the Rosen Plaza Hotel, Orlando, FL. To view the meeting's agenda, click here. To view photo's, go to our Facebook page by clicking here.

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To view the 2018 KDA conference's agenda, click here !

2018 KDA Research Presentations

KD Research in London UK

Kennedy’s Disease Support Groups

Tips and Tricks for Swalling Issues with Kennedy's Disease

Jameson Parker's Tips and Tricks

Using Exercise and other Physical Therapy Interventions to Optimize Functional Mobility

Don't Forget the Women

KDA 2018 Conference Attendees

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Men with Kennedy's Disease

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Researchers

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Carriers, Wives and Significant Others

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The 2017 KDA Conference, November 8-10 at the Holiday Inn in Old Town, Alexandria, VA. To view the meeting's agenda, click here. To view photo's and some pictures, go to our Facebook page by clicking here.

2017 KDA Research Presentations

Genetics Review and Reproductive Options in Kennedy Disease - Alice Schindler, MS & Heather Montie, PhD

PSC/CRISPR Platform at the Montreal Neurological Institute - Lenore Beitel, PhD

Kennedy Disease and Pulmonary Considerations - Noah Lechtzin, MD, MHS

Kennedy Disease 101 - Ed Meyertholen, PhD

Maximizing Functional Independence - Kathy Farrell, MS, OTR/L

Metabolic Changes in SBMA - Dr. Andy Lieberman

Nutrition and Kennedy’s disease - Marnie Dobbin, MS, RDN & Angela Kokkinis, BSN, RN

PolyQLength-Specific Engineering of a HiPSCModel of SBMA Using CRISPR-Cas9 system - Xia Feng, PhD

Silencing of Mutant AR Co-activators as a Therapeutic Approach - Manuela Basso, PhD

Speech and Swallowing in KD: Soup to Nuts - Dr. Neil C. Porter