KDA Conferences and Educational Symposiums

KDA Annual Conference 2021

Thank you to all the presenters and participants who made the 2021 KDA Conference a huge success. The virtual format allowed us to reach many more people in a much greater geographical area, and the quality of the talks were outstanding. Conference Agenda, click here. 

Past Conferences

Conference Dates: Wednesday, October 14th & Thursday, October 15th. Agenda, click here. To view the Q&A from the confernce, click here.

Below are links to a few videos featuring some of the speakers that presented at the 2020 KDA Conference. 

• Conference Intro and KD-101: https://youtu.be/SIn9iKmFjWM
• Day One Conference Summary:  https://youtu.be/m_jkxAgGB4g
• Luca Zampedri, University College London, presents results of a KD patient survey "Priorities in Managing KD Symptoms" that he conducted prior to the KDA/KD-UK joint conference in 2020. To view the video, click here.
• Physical Therapist Joseph Shrader from the NIH presented exercise recomendations for people with Kennedy's disease. To watch the videos. Click here. 

The 2019 KDA Conference, November 13-15 at the Rosen Plaza Hotel, Orlando, FL. To view the meeting's agenda, click here. To view photo's, go to our Facebook page by clicking here.

To view the 2018 KDA conference's agenda, click here! 

2018 KDA Research Presentations

• KD Research in London UK
• Kennedy’s Disease Support Groups
• Tips and Tricks for Swalling Issues with Kennedy's Disease
• Jameson Parker's Tips and Tricks
• Using Exercise and other Physical Therapy Interventions to Optimize Functional Mobility
• Don't Forget the Women

KDA 2018 Conference Attendees

 Men with Kennedy's Disease

Researchers

Carriers, Wives and Significant Others 

The 2017 KDA Conference, November 8-10 at the Holiday Inn in Old Town, Alexandria, VA. To view the meeting's agenda, click here. To view photo's and some pictures, go to our Facebook page by clicking here.

2017 KDA Research Presentations

• Genetics Review and Reproductive Options in Kennedy Disease - Alice Schindler, MS & Heather Montie, PhD
• PSC/CRISPR Platform at the Montreal Neurological Institute - Lenore Beitel, PhD
• Kennedy Disease and Pulmonary Considerations - Noah Lechtzin, MD, MHS
• Kennedy Disease 101 - Ed Meyertholen, PhD
• Maximizing Functional Independence - Kathy Farrell, MS, OTR/L
• Metabolic Changes in SBMA - Dr. Andy Lieberman
• Nutrition and Kennedy’s disease - Marnie Dobbin, MS, RDN & Angela Kokkinis, BSN, RN
• PolyQLength-Specific Engineering of a HiPSCModel of SBMA Using CRISPR-Cas9 system - Xia Feng, PhD
• Silencing of Mutant AR Co-activators as a Therapeutic Approach - Manuela Basso, PhD
• Speech and Swallowing in KD: Soup to Nuts - Dr. Neil C. Porter

2016 KDA Research Presentations

• Understanding KD - Dr. Cynthia Jordan
• Update from the NIH on KD - Dr. Kurt Fischbeck
• Androgen Receptor Modifications - Dr. Janghoo Lim
• Therapeutics Development for KD - Dr. Kurt Fischbeck
• Excercise in KD - Dr. Christopher Grunseich
• Pain Management in KD - Dr. Raghav Govindarajan

 KDA 2016 Conference Attendees

Men with Kennedy's Disease

Researchers

Carriers, Wives and Significant Others 

Previous KDA Conferences