KDA Banner Final 1920x576

Conference Dates: Wednesday, October 14th & Thursday, October 15th. Agenda, click here. This years virtual conference will be a joint effort with the UK and the theme is "Moving Forward Together."  

2019KDA banner V8 white

The 2019 KDA Conference, November 13-15 at the Rosen Plaza Hotel, Orlando, FL. To view the meeting's agenda, click here. To view photo's, go to our Facebook page by clicking here.


To view the 2018 KDA conference's agenda, click here! 

2018 KDA Research Presentations

KD Research in London UK

Kennedy’s Disease Support Groups

Tips and Tricks for Swalling Issues with Kennedy's Disease

Jameson Parker's Tips and Tricks

Using Exercise and other Physical Therapy Interventions to Optimize Functional Mobility

Don't Forget the Women

KDA 2018 Conference Attendees


 Men with Kennedy's Disease




Carriers, Wives and Significant Others 


The 2017 KDA Conference, November 8-10 at the Holiday Inn in Old Town, Alexandria, VA. To view the meeting's agenda, click here. To view photo's and some pictures, go to our Facebook page by clicking here.

2017 KDA Research Presentations

Genetics Review and Reproductive Options in Kennedy Disease - Alice Schindler, MS & Heather Montie, PhD

PSC/CRISPR Platform at the Montreal Neurological Institute - Lenore Beitel, PhD

Kennedy Disease and Pulmonary Considerations - Noah Lechtzin, MD, MHS

Kennedy Disease 101 - Ed Meyertholen, PhD

Maximizing Functional Independence - Kathy Farrell, MS, OTR/L

Metabolic Changes in SBMA - Dr. Andy Lieberman

Nutrition and Kennedy’s disease - Marnie Dobbin, MS, RDN & Angela Kokkinis, BSN, RN

PolyQLength-Specific Engineering of a HiPSCModel of SBMA Using CRISPR-Cas9 system - Xia Feng, PhD

Silencing of Mutant AR Co-activators as a Therapeutic Approach - Manuela Basso, PhD

Speech and Swallowing in KD: Soup to Nuts - Dr. Neil C. Porter



2016 KDA Research Presentations

Understanding KD - Dr. Cynthia Jordan

Update from the NIH on KD - Dr. Kurt Fischbeck

Androgen Receptor Modifications - Dr. Janghoo Lim

Therapeutics Development for KD - Dr. Kurt Fischbeck

Excercise in KD - Dr. Christopher Grunseich

Pain Management in KD - Dr. Raghav Govindarajan

 KDA 2016 Conference Attendees


Men with Kennedy's Disease




Carriers, Wives and Significant Others 




Previous KDA ConferencesClick-here