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Who We Are

Privacy Statement

Your Privacy is Important to the KDA

This is the official Web Site of the Kennedy's Disease Association, Inc.

Our mailing address is

P.O. Box 1105
Coarsegold, CA 93614-1105.

We can also be reached by phone, email or use the Contact the KDA form.

The KDA has created this privacy statement in order to demonstrate our firm commitment to an individual's privacy when visiting our Web Site. The following discloses any information gathering and dissemination practices for this Web Site.

Information Collected

When you visit our Web site, the KDA's server does not automatically capture your domain name or e-mail address.  Our Site does not use 'cookies' except to save your forum and chat room log-on and password.  This information is only collected so you don't have to re-enter the information each time that you use these services.

Registration Forms

To join the KDA, our site's registration form requires users to give us contact information (their first and last name, email address, mailing address, and postal code).  Contact information from the registration form is used to advise you of new on-line material, provide updates about research efforts, trials, as well as potential treatments and cures, and keep registered associates up to date with the latest KDA news.  No information is shared with anyone outside of KDA's management team without the express consent of the individual.

If, at any time, you do not want to receive further emails from the KDA, just click on the 'Safe Unsubscribe' link at the bottom of the email. Your name will be immediately removed from our distribution list.

External Links

This site contains links to other sites.  Even though the Kennedy's Disease Association carefully screens all links before adding them to our web site, we cannot be responsible for the privacy practices or the content of other Web sites.

Public Forums and Chat Rooms

This site makes a public forum and chat room available to its users. Please remember that any information that is disclosed in these and other public areas become public information and you should exercise caution when deciding to disclose any personal information.


This site has security measures in place to protect the loss, misuse, and alteration of the information under our control. While measures are in place, please be aware that nothing is 100% secure.