KDA Board Meeting
Discussed a proposal to provide an information package on KD to MDA facilities; decided to contact MDA HQ to discuss this and potentially have MDA distribute it to branch centers.
Agreed to contact NIH and work with them to develop 1or 2-page information sheets on exercise and speech & swallowing for KD patients to share with their doctors and physical therapists.
Continued the discussion of KDA’s financial status and ways to make the most of our resources.
Discussed the NIH grants process and implications for the KDA.
Learned that the registration page for the International KD Conference was up in draft form – now up and running – and voted to offer some financial assistance to help offset the costs of the conference which will be free for all attendees.
Discussed the process for donating in someone’s memory on the KDA webpage and decided to add some language to make it clearer.
Continued the discussion of how best to update and maintain the list on the KDA webpage of doctors familiar with KD.