First and foremost, the KDA is a Family

We came together because we had a common bond

Every day we live with Kennedy's Disease

We stay together because we are now friends with a common goal

We all seek a treatment or cure


 Our family continues to grow


The KDA family has grown over the last seventeen years.  As of February, 2021, 1,475 people in 51 countries have registered with the KDA. Of those registered: 

  • 774 men with the defective gene

  • 192 women that are carriers

  • 373 family members and friends of someone living with Kennedy's Disease

  • 136 researchers and doctors