KDA's Mission
The KDA is about to celebrate its 25th year. The KDA's mission has remained the same. To inform, support, educate, fund research and find a cure for Kennedy's Disease. Help us find a cure. Donate today
News & Events
2025 Grants and Fellowship Announcement
The Kennedy's Disease Association is pleased to announce its 2025 SBMA research grants and fellowship programs. Through these programs, we seek to further understand the pathological mechanisms of and possible treatments for Kennedy's disease. For details and proposal instructions, click here. The submission deadline for both programs is Monday, June 2, 2025. Awards will be announced in September after a review by the KDA's Scientific Review Board.
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New research "Kennedy Disease in Latin America: Two New Mexican Cases and a Systematic Review of Regional Reports." To read the article, click here.
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Get Ready! Register now for the 13th annual Kennedy's Disease Golf Scramble by clicking here.
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Kennedy's Disease is an adult-onset disease with symptoms usually appearing between the ages of 30 and 50. However, earlier and later onsets have been recorded. Life expectancy is noted to be at or almost normal. Generally males with this inherited gene develop symptoms, while females with this gene are carriers. For more information click here.
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Kennedy's Disease support groups connect people living with and/or effected by Kennedy's Disease together for support. To find your group, click here.
More News
Global Genes is a 501(c)(3) non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally. The organization has many resources which include blog posts with information designed for people living with Rare Diseases like Kennedy's Disease. Subjects include: Global Genes Guide to Medical Gaslighting, Next Gen Advocacy and The Beginner’s Guide to Rare Disease.
We are pleased to bring you the first edition of the International Kennedy's Disease Newsletter, a collaborative effort of Kennedy's disease patient advocacy groups in six countries.
