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Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

Our Focus Remains on Research, Education and Support

The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts. We distributed information to more than 10,000 neurologists to help them recognize clinical signs and symptoms of Kennedy’s Disease.

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Will my child be born with this DNA defect?

It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments. We are searching for available foundation grants, but the process is lengthy. We need researchers to continue their work, and it is only the KDA that makes funding this disease a priority.

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Kennedy’s Disease Knows No Boundaries...

It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers. The defect is in the ‘X’ Chromosome that makes testosterone almost a poison to his body.

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What is Kennedy's Disease?

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50. However, onset has also been reported as early as in the teens and as late as the 60s.

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Help Us Find A Cure!

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Kennedy's Disease Association

ThankYou

Thank you for your support

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In 2013, your generous donations allowed the KDA to award $100,000 in research grants

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The 2nd Annual Queen Anne's Race, a 5k trail run to end Kennedy's Disease, was held on April 6, 2014 in Cooksville MD.

Click here for Pictures and More Pictures.

Click on the image to the right for more information.

 

 


Rolling for a cure!

Click on the picture below for more info

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Robert Tudor fundraising for Kennedy's Disease Association

 



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You are not alone


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The KDA's mission is to inform, support,

educate, fund research, and

find a cure for Kennedy's Disease


YouAreNotAlone


Spinal Bulbar Muscular Atrohy,  X-linked Spinal Bulbar Muscular Atrophy,  SBMA

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Use the Join Today link above to register online with detailed contact information.

 

You may also use your mobile device to scan the QR Code below to register quickly using only your name and email address.  You will begin receiving KDA information updates immediately.  We will ask for your detailed contact information later.

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Together we will make a difference

 

Check out What's New, Research News and KDA News
for research updates,events and other relevent information
     

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    P.O. Box 1105
    Coarsegold, CA 93614-1105

    (559) 658-5950

    "I am amazed at the wonderful support that the KDA gives to the men and families affected by KD. The progress made by current research on animal models of KD and by therapeutic trials gives reason to hope that the disease that I described 40 years ago will finally be conquered."
    -- William R. Kennedy, M.D.

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