Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"The web site acted as a central organizing influence for the sharing of information and brotherhood. Without the KDA, I was alone, as this disease is very rare and even my neurologist was less than fully knowledgeable."

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Kennedy's Disease Blog


 "I am amazed at the wonderful support that the KDA gives to the men and families affected by KD. The progress made by current research on animal models of KD and by therapeutic trials gives reason to hope that the disease that I described 40 years ago will finally be conquered."
-- William R. Kennedy, M.D.
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The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts.

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It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments.

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It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers.

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Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50.

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Help Us Find A Cure!







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Recent Studies for the Treatment of Kennedy's Disease

Fischbeck RDR 13May15

Click the image above for the article and video of an exclusive interview with Dr. Fischbeck, MD of NINDS


2015 KDA Conference Attendees


2015 KDA Conference Researchers


A recap of our 2015 KDA Conference will be coming soon!

You are not alone because we are all family


The KDA's mission is to inform, support, educate,

fund research, and find a cure for Kennedy's Disease

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Together we will make a difference


 Spinal Bulbar Muscular Atrophy

Current Kennedy's Disease Research


Stem cell-derived motor neurons from spinal and bulbar muscular atrophy patients

September 08, 2014 - Highlights:  We characterized stem cells and motor neuron derivatives from patients with SBMA. Variation in the repeat expansion mutation was observed in the cultured cells. Reduced HDAC6 levels were found in the derived motor neurons. Motor neurons from 2 patients with long repeats had increased acetylated α-tubulin.

 Peripheral Androgen Receptor Gene Suppression Rescues Disease in Mouse Models of Spinal and Bulbar Muscular Atrophy

May 08, 2014 - Highlights:  AR-targeted antisense oligonucleotides suppressed gene expression in mice. Subcutaneous delivery suppressed AR gene expression in the periphery but not the CNS. Subcutaneous administration rescued disease in two mouse models of SBMA. Peripherally expressed polyQ AR contributes to disease and is a therapeutic target

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, X-linked Spinal Bulbar Muscular


Atrophy, SBMA, neuromuscular disease, support group