Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"Surfing the internet I found the KDA and for me it was like an island for a castaway."

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Living with

Kennedy's Disease Blog

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 "I am amazed at the wonderful support that the KDA gives to the men and families affected by KD. The progress made by current research on animal models of KD and by therapeutic trials gives reason to hope that the disease that I described 40 years ago will finally be conquered."
-- William R. Kennedy, M.D.
 
Progress
 
The KDA is proud to provide information, education, and support to over 3 Million visitors.

 

Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50.

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The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts.

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It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments.

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It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers.

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Help Us Find A Cure!

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We need your help. It's time for the final push!

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Join rare disease advocates around the country and tell your Senators to support the Senate Cures Legislation. This month is the last chance for Senate Cures to pass before the Senate is out of session until after the November election. To learn more and how you can help, click here. 



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Fathers day is Sunday, June 19th. If you shop for dad using Amazon Smile, the AmazonSmile Foundation will donate 0.5% of the purchase price to the KDA. To start shopping and help us find a cure, click here or on the picture above. 


2015 KDA Conference Attendees

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View our 2015 KDA Christmas Newsletter with Conference Summary & Research Updates. Click here


You are not alone because we are all family

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The KDA's mission is to inform, support, educate,

fund research, and find a cure for Kennedy's Disease

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Together we will make a difference

 

 Spinal Bulbar Muscular Atrophy

Current Kennedy's Disease Research

June 2016 - MiR-298 Counteracts Mutant Androgen Receptor Toxicity in Spinal and Bulbar Muscular Atrophy. The article was originaly published in Molecular Therapy in January 2016. To read the article, click here


June 2o16 - Discovery of molecular protection linked to Kennedy’s disease. Scientists from IRB Barcelona have described a molecular system of protection that involves the androgen receptor protein, a molecule that is mutated in patients with Kennedy’s disease and which cause progressive muscle wastage. To read the article, click here.


May 2016 - Michigan State University researchers used an old-fashioned neurobiology technique to explore new avenues for treatments to reverse Kennedy's disease. To read the article, click here. To read the abstract 'Defects in Neuromuscular Transmission May Underlie Motor Dysfunction in Spinal and Bulbar Muscular Atrophy' published in the Journal of Neuroscience, click here


April 26, 2016 - Although JAMA Neurology published the following article in 2012, Molecular Pathophysiology and Disease-Modifying Therapies for Spinal and Bulbar Muscular Atrophy, the research information was just recently added this year to our Research Update archives. The paper does a good job of explaining Kennedy's Disease to the layperson. To view the article click here. To view our Research Update archive, click here.  


February 6, 2016 -  Ed Meyertholen, Ph.D. goes over the latest research with Kennedy's Disease on February's monthly chat. To view February's chat transcript. Click here


January 4, 2016 - Gene editing spurs hope for muscular dystrophy cure. For the first time, a breakthrough technique called CRISPR has been used to treat a genetic disease inside a living mammal. Click here to read the article. Click here to watch a CBS This Morning video on CRISPR.

Click here to read more research articles

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, X-linked Spinal Bulbar Muscular

 

Atrophy, SBMA, neuromuscular disease, support group