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KDA Board Meeting

Thursday, April 13, 2023
8:00 pm EDT10:00 pm EDT

Learned that KDA President Terry Thompson has been invited to be a member of the Steering Committee of the LONDC (Late Onset Neuromuscular Disease Consortium).
Discussed the financial status of the KDA and possibilities for offsetting the decline in donations.
Discussed items for the next KDA Newsletter, expected to be published near the end of the month.
Discussed and approved funding for the second year of Dr. Shinichiro Yamada’s grant.
Discussed the feasibility of distributing Japan’s genomic knowledge survey to KDA members.
Received a status report on the 2023 KD Global Conference in London, anticipating that registration and more detailed information will be available to KDA members by the end of April.