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Volunteer

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We Need Your Help - Become a Volunteer!

Join the Kennedy’s Disease Association (KDA) as a volunteer and help us make a real difference in the lives of those affected by Kennedy’s Disease.

Volunteers are the heart of our organization -- from our all-volunteer Board of Directors to our dedicated members and individuals who support our events, communications, and research initiatives. As we enter an new phase of activity, growth and scientific progress, we need more passionate people like you to help us keep our momentum going.

With clinical trials underway and increased funding to support groundbreaking research — including single-year and multi-year grants and the Waite-Griffin SBMA Fellowships for junior researchers — our future is bright. This progress has been made possible thanks to the incredible generosity of KD patients, their families and supporters. But there's still more to be done, and we can't do it without your help.

Current Volunteer Opportunities:

There’s a place for you at the KDA, whether you have a few hours a month or specific skills to share. Below is a list of current volunteer opportunities.

  • Conference and Event Planning
  • Fundraising
  • Communications (Social Media, Marketing, Content)
  • Administrative Support

Interested in Joining Us?

Fill out the form below, and one of our Board members will be in touch soon. Together, we can bring hope to the KD community.

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We're Stronger Together

Become a Member of the KDA Community

Membership is free and open to anyone affected by or interested in Kennedy’s Disease, including patients, carriers, families, caregivers, and clinicians.

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