We Need Your Help - Become a Volunteer!
Join the Kennedy’s Disease Association (KDA) as a volunteer and help us make a real difference in the lives of those affected by Kennedy’s Disease.
Volunteers are the heart of our organization -- from our all-volunteer Board of Directors to our dedicated members and individuals who support our events, communications, and research initiatives. As we enter an new phase of activity, growth and scientific progress, we need more passionate people like you to help us keep our momentum going.
With clinical trials underway and increased funding to support groundbreaking research — including single-year and multi-year grants and the Waite-Griffin SBMA Fellowships for junior researchers — our future is bright. This progress has been made possible thanks to the incredible generosity of KD patients, their families and supporters. But there's still more to be done, and we can't do it without your help.
Are You Passionate About Raising Awareness and Connecting the KD Community Around the World?
There’s a place for you at the KDA, whether you have a few hours a month or specific skills to share.
We're looking for volunteer support in these areas:
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Social Media:
Help us manage our social media pages. Some experience with social media platforms (Facebook, Instagram, LinkedIn and YouTube) and Canva is required, but we’ll provide training and support in areas like content and video creation, developing a social media strategy and content calendar.
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Event Volunteers:
We’re looking for dedicated volunteers to support our upcoming events! Opportunities are available for photographers, videographers, and general volunteers, both on-site and behind the scenes. Your time and talent can help make this important event a success.
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Content Creation:
Writing, graphics, content strategy and content calendar.
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Video Projects:
New videos (volunteer video, KDA intro video, brand story video).
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Event Support:
2026 International KD Patient and Scientific Conference: photographers, videographers, and general event support, Toronto KD Gathering: general event support.
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Monthly Newsletter:
Contribute to our communication strategy and content.
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Storytelling:
Help transform existing patient stories into relatable, impactful narratives.
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Microsoft SharePoint:
Setting up and managing the volunteer site.
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Fundraising
Fundraising: Raise more awareness and funds.
Please reach out to us today to Get Involved!
See our Upcoming Volunteer Meetings!
Interested in Joining Us?
Fill out the form below, and one of our Board members will be in touch soon. Together, we can bring hope to the KD community.
