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Become a KDA Member

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Membership is Free and Open to Anyone Affected By or Interested in Kennedy’s Disease (KD)

When you sign up as a member of the Kennedy's Disease Association (KDA), you’ll receive valuable information, including helpful resources, important links, and other updates directly in your inbox. 

Please review our Privacy Statement before joining. The information you share with us is kept strictly confidential and will never be shared without your prior consent. You can update your KDA Member Profile, or unsubscribe anytime with just one click.

Join the KDA Community Today 

Stay Informed, Find Support, and Make a Difference.


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As a KDA member, you will:

  • Connect with others. Join a supportive community of people who understand your journey.
  • Stay informed. Get early access to the latest research, clinical trials, treatments, community news, quarterly newsletters, international KD updates, and upcoming events and fundraisers.
  • Access helpful resources. Find educational materials, care tips and expert guidance.
  • Hear real stories. Be inspired by personal experiences of others living with KD.
  • Participate in KDA events. Join support groups, attend webinars and conferences, and engaged directly with medical experts and researcher.
  • Make your voice count. Help us shape our programs, share your feedback and raise awareness.
  • Receive special announcements. Be among the first to know about new initiatives, research milestones, and opportunities to get involved.
  • Support a global mission. Your membership strengthens the voice of the KD community and supports advocacy, education, and research efforts worldwide.
  • Access member opportunities. Participate in surveys, volunteer projects, clinical studies, and more.

Keep Your KDA Member Profile Up to Date

Has your email address, mailing address, or name changed since you joined the KDA? Make sure your member profile is current so you don’t miss any important updates, resources, or announcements from the KDA.

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We're Stronger Together

Become a Member of the KDA Community

Membership is free and open to anyone affected by or interested in Kennedy’s Disease, including patients, carriers, families, caregivers, and clinicians.

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