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2025

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Join us for the upcoming KDA Fundraising & Volunteer Committee Meeting - it's an important monthly meeting to connect, collaborate, and contribute to our mission of finding a cure for Kennedy’s Disease. Our dedicated volunteers gather each month to plan fundraising initiatives, share updates, and explore new ways to support the KDA. Please contact us if you'd like to get involved. Together, we can make a meaningful difference.

Thursday, August 14, 2025
8:00 pm EDT10:00 pm EDT
KDA Board Meeting

The KDA board meets monthly to provide oversight, set strategic direction, and ensure the Kennedy's Disease Association achieves its goals and mission.

Join us for the upcoming KDA Fundraising & Volunteer Committee Meeting - it's an important monthly meeting to connect, collaborate, and contribute to our mission of finding a cure for Kennedy’s Disease. Our dedicated volunteers gather each month to plan fundraising initiatives, share updates, and explore new ways to support the KDA. Please contact us if you'd like to get involved. Together, we can make a meaningful difference.

Thursday, September 11, 2025
8:00 pm EDT10:00 pm EDT
KDA Board Meeting

The KDA board meets monthly to provide oversight, set strategic direction, and ensure the Kennedy's Disease Association achieves its goals and mission.

Join us for the upcoming KDA Fundraising & Volunteer Committee Meeting - it's an important monthly meeting to connect, collaborate, and contribute to our mission of finding a cure for Kennedy’s Disease. Our dedicated volunteers gather each month to plan fundraising initiatives, share updates, and explore new ways to support the KDA. Please contact us if you'd like to get involved. Together, we can make a meaningful difference.

Kennedy's Disease Association - Virtual Meeting with the Board of Directors

At the Kennedy's Disease Association (KDA), our members are at the heart of everything we do. That’s why we’re inviting you to a special Virtual Meeting with the Board of Directors—a time for open conversation, collaboration, and shared ideas.

This meeting is more than just a chance to connect; it’s an opportunity for you to share how the board can better support you and for us to explore how, together, we can further the mission of KDA.

We truly value your experiences, insights, and ideas, and we want this to be a two-way conversation, a partnership where we listen, learn, and grow as a community.

Please contact us to attend the meeting.

Meeting Details:

📅 Date: October 18, 2025
🕒 Time: 11:00am EST
📍 Location: Online (Meeting link will be provided upon RSVP)

More information to follow as the date gets closer.

Join us for the upcoming KDA Fundraising & Volunteer Committee Meeting - it's an important monthly meeting to connect, collaborate, and contribute to our mission of finding a cure for Kennedy’s Disease. Our dedicated volunteers gather each month to plan fundraising initiatives, share updates, and explore new ways to support the KDA. Please contact us if you'd like to get involved. Together, we can make a meaningful difference.

Thursday, November 13, 2025
8:00 pm EST10:00 pm EST
KDA Board Meeting

The KDA board meets monthly to provide oversight, set strategic direction, and ensure the Kennedy's Disease Association achieves its goals and mission.

Join us for the upcoming KDA Fundraising & Volunteer Committee Meeting - it's an important monthly meeting to connect, collaborate, and contribute to our mission of finding a cure for Kennedy’s Disease. Our dedicated volunteers gather each month to plan fundraising initiatives, share updates, and explore new ways to support the KDA. Please contact us if you'd like to get involved. Together, we can make a meaningful difference.

Thursday, December 11, 2025
8:00 pm EST10:00 pm EST
KDA Board Meeting

The KDA board meets monthly to provide oversight, set strategic direction, and ensure the Kennedy's Disease Association achieves its goals and mission.

Hands joined in a circle, symbolizing unity.

We're Stronger Together

Become a Member of the KDA Community

Membership is free and open to anyone affected by or interested in Kennedy’s Disease, including patients, carriers, families, caregivers, and clinicians.

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