Guides

Short KD Reference Guides

These 1-2 page documents provide information for patients as well as medical personnel who may not be familiar with KD.  We encourage you to print copies to share with doctors, clinicians, and therapists.

Practical Guidance for Patients

Additional Resources

The Kennedy’s Disease Association (KDA) has identified several resources to help individuals and their families understand and live with this rare neurological disorder. 

• Global Genes Quick Guide Series
• Exercises
• YouTube videos 
• KDA Brochure
• SMBA Explained - MDA Website
• Wikipedia - Kennedy's Disease
• Living with Kennedy’s Disease Blog has articles related to living with Kennedy’s Disease, research, and personal stories. In addition, the blog contains plenty of resources related to Kennedy's Disease. Due to Bruce Gaughran's death, the blog is no longer updated but this doesn't take away the amount of helpful information it contains. 
• National Institute of Neurological Disorders Kennedy's Disease Page 
• Understanding Kennedy's Disease - Dr. Cynthia Jordan
• Information for people with or affected by Kennedy's Disease - MNDA
• Kennedy Disease 101 - Ed Meyertholen, PhD
• The KDA is on Facebook provides association and personal news as well as updates and links to information of interest. 

The Kennedy’s Disease Association (KDA) has identified several resources to help individuals and their families understand and live with this rare neurological disorder. These include:

• From the Living with Kennedy’s Disease Blog which has articles related to living with Kennedy’s Disease, research, personal stories and plenty of resources related to Kennedy's Disease.
• YouTube videos related to Kennedy's Disease.
• Exercises that might help those living with the disease.
• Links to 3rd party sites which discuss Kennedy's Disease.