Every connection, donation, and shared story brings us one step closer to a world without Kennedy’s Disease.
Since 2000, KDA has empowered patients and families, supported groundbreaking research, and built a global community grounded in compassion, education, and action. As a volunteer-run organization, we make every dollar and every effort count.
What We’ve Achieved Together
$1 Million+ Invested in Research
We've funded over 30 research projects across leading academic institutions worldwide—advancing our understanding of Kennedy’s Disease and potential treatments. Funding early-stage, high-impact studies that explore causes, treatments, and potential therapies for Kennedy’s Disease.
Global Awareness
Our resources and support reach individuals and families in over 50 countries, creating a strong and connected international community. Amplifying the voices of those living with Kennedy’s Disease through campaigns like Awareness Month and the 100-Step Challenge.
Community & Scientific Collaboration
Annual Scientific Conferences Hosting conferences, webinars, and forums that connect patients, researchers, and medical professionals. We bring researchers, clinicians, and patients together to share the latest findings and foster collaboration across disciplines.
Patient & Family Support
Through education, online communities, and caregiver resources, we help families navigate the challenges of living with Kennedy’s Disease. Providing educational resources, support groups, and direct outreach to individuals and families affected by KD.
Fundraising Campaigns
We raise vital funds and awareness every year with the help of our supporters around the world through fundraising campaigns: Dim Sum Give Some, Golf Scramble, Bay Area Rare Disease Day and the 100-Step Challenge.
How Your Donations Make a Difference
Over the course of the last 19 years, over 95¢ of every dollar received by the KDA is used on Kennedy’s Disease research and education. This is only possible because the KDA is an all-volunteer organization, including the board of directors and everyone who engages in fundraising and our day-to-day operations.
