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The Kennedy’s Disease Association (KDA) is a non-profit corporation, incorporated in California on August 21, 2000. We are dedicated to funding and promoting research aimed at finding effective treatments and ultimately a cure for Kennedy’s Disease (KD), also known as Spinal and Bulbar Muscular Atrophy (SBMA).

The KDA is recognized under the United States of America Internal Revenue Code 501(c)3 as a publicly supported organization as described in sections 509(a)1 and 170(b)1(A)(vi). In the United States, donations are considered tax deductible by the Internal Revenue Service, and our federal tax identification number is 77-0552005. 

For detailed information, please refer to the KDA Annual Reports, Financials, Articles of Incorporation and IRS Determination Letters. If you have any questions, please Contact the KDA.

Trusted Worldwide by the Kennedy's Disease Community

Proudly Recognized for Transparency, Accountability, and Earning Your Trust

The Kennedy’s Disease Association is proud to hold top ratings from both Candid and Charity Navigator, trusted platforms that evaluate nonprofit organizations for transparency, accountability, and impact. 

These badges reflect our ongoing commitment to ethical stewardship, financial responsibility, and measurable progress in the fight against Kennedy’s Disease.

Annual Reports

The KDA Annual Reports are PDF documents.


Financials

The KDA Financials are PDF documents.

Tax Form 990


Articles of Incorporation

The Articles of Incorporation is PDF document.


IRS Determination Letters

The IRS Determination Letters listed below are PDF documents.

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We're Stronger Together

Become a Member of the KDA Community

Membership is free and open to anyone affected by or interested in Kennedy’s Disease, including patients, carriers, families, caregivers, and clinicians.

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