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About Us

Vision and Mission

About Us

Our Vision

Uniting to Conquer Kennedy’s Disease – Supporting Those Affected

We support patients and families affected by Kennedy’s Disease through education, resources, community connection, and research collaboration, while providing research funding to advance treatments and move closer toward a cure.

Our Mission

Our Goal Is Clear: To Help Find a Treatment or Cure for Kennedy’s Disease (KD)

The Kennedy's Disease Association's (KDA's) mission is to:

  • Financially support and promote medical research aimed at discovering effective treatments and, ultimately a cure for Kennedy's Disease.
  • Create a strong support system for individuals and families impacted by Kennedy's Disease.
  • Share reliable, up-to-date information about Kennedy's Disease for those searching for answers.
  • Improve awareness for Kennedy's Disease within the medical community to support earlier diagnosis, better care, and advocacy.
  • Increase public awareness of Kennedy's Disease and its impact on individuals and families.
Hands joined in a circle, symbolizing unity.

We're Stronger Together

Become a Member of the KDA Community

Membership is free and open to anyone affected by or interested in Kennedy’s Disease, including patients, carriers, families, caregivers, and clinicians.

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