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Board Notes Archive

August 2026 Meeting Notes

Meeting Highlights:  

  1. KDA president provided an update on AnnJi’s Phase 3 clinical trial of AJ-201. While AnnJi has not yet announced the start date of the trial or when they will begin registering patients, they are making good progress with site selection and regulatory approval.
  2. KDA Treasurer provided a financial update indicating that this year’s revenue is slightly behind the projection and detailed several fundraising campaigns that are planned for the remainder of the year.  
  3. Planning for the November 2027 conference is ongoing, with some last-minute details to be worked out before announcing the date and location.  
  4. With the search for an executive director for the KDA well underway, the Board briefly discussed the initial candidates and agreed on a compensation package.  
  5. Discussed the KD Voices patient advisory board for which volunteers are expected to be selected by late September/early October.  
  6. Approved an applicant for financial aid for genetic testing. 
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