January 28, 2025
December 2024 Meeting Notes
- Updates from KDA President:
- Decided to consolidate KDA annual grant and fellowship awards with grant proposals from Banbury workshop participants. RFPs for all awards will now be published in February.
- The MDA will be sponsoring a webinar for SBMA patients in the first quarter of 2025.
- We’re planning a website strategy review with our provider, Firespring, to ensure we’re meeting the needs of our users.
- KDA Treasurer provided a financial update and discussed a proposal for an audit to remain compliant with state regulations, which the Board then voted on and approved.
- Discussed and approved funding to support the 2025 Gordon Conference on CAG repeat disorders. Also voted to approve up to ten $2000 student travel grants to attend the conference.
- Discussed the possibility of offering emergency KD ID bracelets modeled on those developed by KD-UK. KDA will confer with KD-UK and come up with a plan of action.
- Elected KDA Board officers for 2025. All current officers were voted in again.
- Discussed the 2024 conference, with KDA Vice President providing a review of the comments from the post-conference surveys. Also discussed plans for the next conference which will tentatively be held in the first quarter of 2026 and will be both a patient and an international research conference, similar to the one held in London in 2023.
