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Board Meeting Notes

May 2023 Meeting Notes

  • Discussed a proposal to provide an information package on KD to MDA facilities; decided to contact MDA HQ to discuss this and potentially have MDA distribute it to branch centers.
  • Agreed to contact NIH and work with them to develop 1 or 2-page information sheets on exercise and speech & swallowing for KD patients to share with their doctors and physical therapists.
  • Continued the discussion of KDA’s financial status and ways to make the most of our resources.
  • Discussed the NIH grants process and implications for the KDA.
  • Learned that the registration page for the International KD Conference was up in draft form – now up and running – and voted to offer some financial assistance to help offset the costs of the conference which will be free for all attendees.   
  • Discussed the process for donating in someone’s memory on the KDA webpage and decided to add some language to make it clearer.  
  • Continued the discussion of how best to update and maintain the list on the KDA webpage of doctors familiar with KD.
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