Personal Stories of Individuals Living with Kennedy's Disease
Each of the following individuals lives with Kennedy’s Disease. They’ve generously shared their personal stories to help others gain a deeper, more personal understanding of the condition. We are deeply grateful for their openness, courage, and willingness to inform and inspire others through their experiences.
Newest Stories
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Born 1962 - Australia
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Born 1951 - England
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Born 1943 - FL, USA
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Born 1937 - Canada
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Born 1936 - NC, USA
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Born 1933 - CA, USA
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Born 1927 - WV, USA
From a Family and Friends Point-of-View:
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MI, USA
Personal Stories: Videos
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Rare Disease Awareness and Kennedy’s Disease
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KD and the Waites
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Treatment Diary of Mr. Mattheis
Medical Information
With Kennedy's Disease being a very rare disease. Medical concerns can arise. The KDA has put together a section of resources that addresses some of these concerns that may arise for those who suffer from Kennedy's Disease. This includes surgery concerns to Covid vaccination guidelines to disease management guidelines. To access this Medical Information page, click here.
