Steps I Will Always Remember
On my wedding day, my dad walked me down the aisle - a moment I wasn’t sure would be possible. He was struggling to stay on his feet due to what we didn’t know was Kennedy’s Disease.
On that day, with a cane in one hand and me supporting him on the other, he walked those precious steps, smiling proudly beside me. I held him steady as we moved down the aisle, step by step. Tears welled in my eyes from gratitude that he could be there with me.
It took seven years to receive a diagnosis: Kennedy’s Disease, yet he never once complained about his condition. He found joy in simple things, like riding his John Deere mower around the yard. I cherish that memory. He couldn’t walk much anymore so it gave him a sense of freedom. That was his way of holding onto dignity, independence and happiness.
This is why I’m passionate about finding a cure for Kennedy’s Disease. Every step you take, and every dollar you donate helps people like my dad. It’s not just about a cure - it’s about giving families the support they need for those simple, everyday moments that matter the most.
Carol Frey Clark
