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If you want to be in the know about what’s going on, you’ve come to the right place. Read the latest KDA news and newsletters below.

International Kennedy’s Disease Newsletter: Spring 2026

International Kennedy's Disease Newsletter

Spring 2026

We are pleased to bring you the Spring 2026 edition of the International Kennedy's Disease Newsletter, a collaborative effort uniting patient advocacy groups across six countries: Australia, France, Italy, Japan, the United Kingdom, and the United States.

This edition highlights the latest news, initiatives, and community updates from each country. The bonds between Kennedy’s Disease patient advocacy groups continue to grow stronger.

Our goal is to share information with the global community of people with lived experience of Kennedy's Disease, including men living with KD, carriers, family members, and the researchers dedicated to finding answers

Together, we are building a more connected, informed, and resilient global community.

Download the International Kennedy's Disease Newsletter - Spring 2026. LINK: coming soon!

 

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Membership is free and open to anyone affected by or interested in Kennedy’s Disease, including patients, carriers, families, caregivers, and clinicians.

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