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Board Meeting Notes

August 2025 Meeting Notes

Meeting Highlights:  

  1. The annual election of the KDA Board of Directors was held at this meeting. All current officers and directors were re-elected and no new members were nominated. (Official certification attached.)
  2. The greater part of the meeting was a strategy session looking at how the KDA is doing and what might be done to move it forward. Specific discussion items were:
  • How our current operation, which involves some outsourcing, comports with our all-volunteer description.
  • How to grow our membership through broadening our reach and engaging more frequently.
  • Fundraising efforts, which are resulting in incremental growth in income but need to be adjusted to make a more significant impact on our mission.  
  1. Discussed progress on establishing Centers of Excellence for SBMA, including increasing medical community awareness, developing partnerships with related organizations like the AAN (American Academy of Neurology), and increasing patient awareness and access to treatment.  
  2.  Additional updates:
  • Dale Traxler will represent the KDA as the luncheon speaker at a golf tournament to be held in memory of Larry Ballard in Charlotte, NC on October 18.  
  • Also on October 18 the KDA Board is planning a virtual meeting that will be open to KDA membership.  

 

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