Updates from KDA President:
- This year’s KDA Golf Scramble has been scheduled for Saturday May 3.
- The MDA webinar on SBMA is planned for late February 2025, with the KDA represented by Vice President Jameson Parker.
- Having developed KD ID emergency bracelets for their membership, KD-UK has offered to provide them to the KDA as well. An announcement will be made when they become available to our members.
KDA will award seven travel grants for PhD students and postdocs to attend the 2025 Gordon Research Conference on CAG expansion repeat diseases.
KDA Treasurer provided a financial update and received Board approval for the proposed 2025 budget. This was followed by a discussion of what we might do to turn the gradual increase in donations into an impactful upward trajectory to move us to the next level in pursuing a treatment or cure for KD.
KDA President presented his vision and goals for 2025: to accelerate progress toward finding a cure for KD with improved fundraising and a stronger, more empowered Board of Directors.
Discussed the next KDA Conference, which will be a four-day patient and research conference in February 2026, most likely in Orlando FL. Site selection should be made by the end of this month.
