October 18, 2024
September 2024 Meeting Notes
- Updates from KDA President:
- The KDA-sponsored Banbury research conference (8-9 September), focusing on protein quality control in SMBA, was judged extremely productive. Of note was that the researchers asked many questions about men’s symptoms.
- The SRB’s evaluations of this year’s grant and fellowship proposals are expected before the end of the month and will be discussed at next month’s Board meeting.
- Financial Update:
- August was a relatively quiet month with the exception of $8K in donations from the Montie 5K fundraiser.
- Our first annual third-party financial review has been completed.
- Decision was made to change the KDA mailing address from a P.O. box to a physical address. SR and JL are working on various aspects of the change.
- Update on KDA 2024 Conference:
- Final details are being worked out, the agenda is nearly in final form, we’ve nearly reached the maximum number of attendees, and the number of researchers attending may be the highest ever.
- Decision was made not to hold the November Board meeting at the conference.
- Board members spent the remainder of the meeting time discussing the Research Partnership Maturity Model for Patient Organizations to generate ideas on how we can be more effective in engaging with patient and research communities, working with industry, finding more funding sources, and accelerating research toward a cure.
