Skip to main content

News Room

Board Meeting Notes

June 2024 Meeting Notes

  1. Updates provided by KDA President:  
  2. We have received or have commitments for two large donations totaling $25,000 for conference support, as well as $105.000 in two grants for education and research.  
  3. KDA member Dan Jacobs has made it to the finals of Top Chef. We are all rooting for you, Dan, and wish you all the best for next week! 
  4. Update on KDA 2024 Conference: 
  5. We have met our room-night obligation at the Rosen hotel and have a total of 67 people thus far registered to attend in person, which indicates attendance is going to be high this year. 
  6. A draft agenda will be released later this month. Patient-focused talks are nearly in final form, while we’re still working on the research portion. 
  7. Discussed the proof draft of the 2023 Annual report, which for the first time was professionally formatted, and will be making final edits within the next few days. 
  8. Discussed patient support issues, including the establishment of the Caregiver Support Group run by Anita Kowalski.
  9. Voted to approve the two highest-ranking proposals for Banbury 2023 grants.
  10. Voted to approve the Treasurer’s motion for a financial review, which will enhance our compliance with financial best practices as we grow our fundraising to the next level.
Hands joined in a circle, symbolizing unity.

We're Stronger Together

Become a Member of the KDA Community

Membership is free and open to anyone affected by or interested in Kennedy’s Disease, including patients, carriers, families, caregivers, and clinicians.

MENU CLOSE