- KDA President’s Updates:
- Proceeds from the 2023 Texas Golf Scramble will be used to fund the KDA’s 2023 SBMA Research Workshop at the Banbury Center in NY.
- The KDA website now includes information on NIDO-361, the drug developed by Nido Biosciences to treat KD that is nearing clinical trial stage. In addition there is now a link to the MDA page that provides a clear description of the phases of clinical trials.
- There is a tentative agreement with the MDA to share the French protocol for treating KD with its adult care centers.
- Met with past KDA presidents who agreed to act as an informal advisory committee on fundraising.
- Board was briefed on how its financial contribution to the 2023 Global KD Conference in London will be used.
- Discussed in depth the composition and operation of the KDA Board.
- Discussed the need for volunteers and decided to put a notice on the KDA website on where/how to sign up to volunteer.
