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YiddishPrevious KDA Conferences
2020
“Moving Forward Together”
2020 KDA/KD-UK Virtual Conference
October 14 - 15, 2020
Conference Agenda: Click Here. To view the Q&A from the conference, Click Here
Below are links to a few videos featuring some of the speakers that presented at the 2020 KDA Conference.
- Conference Intro and KD-101: https://youtu.be/SIn9iKmFjWM
- Day One Conference Summary: https://youtu.be/m_jkxAgGB4g
- Luca Zampedri, University College London, presents results of a KD patient survey "Priorities in Managing KD Symptoms" that he conducted prior to the KDA/KD-UK joint conference in 2020. To view the video, click here.
- Physical Therapist Joseph Shrader from the NIH presented exercise recomendations for people with Kennedy's disease. To watch the videos. Click here.
2019
“Fun in the Sun And Living Well With KD"
Rosen Plaza Hotel, Orlando, Florida (USA)
November 13 - 15, 2019
Conference Agenda: Click Here. To view photo's, go to our Facebook page. Click Here.
2018
“Solving the KD Puzzle"
San Diego, California (USA)
October 31st - November 2nd, 2018
Conference Agenda: Click Here
2018 KDA Research Presentations
Kennedy’s Disease Support Groups
Tips and Tricks for Swalling Issues with Kennedy's Disease
Jameson Parker's Tips and Tricks
Using Exercise and other Physical Therapy Interventions to Optimize Functional Mobility
2017
“Caucusing For A Cure"
Holiday Inn in Old Town, Alexandria, Virginia (USA)
November 8th - 10th, 2017
Conference Agenda: Click Here
2017 KDA Research Presentations
PSC/CRISPR Platform at the Montreal Neurological Institute - Lenore Beitel, PhD
Kennedy Disease and Pulmonary Considerations - Noah Lechtzin, MD, MHS
Kennedy Disease 101 - Ed Meyertholen, PhD
Maximizing Functional Independence - Kathy Farrell, MS, OTR/L
Metabolic Changes in SBMA - Dr. Andy Lieberman
Nutrition and Kennedy’s disease - Marnie Dobbin, MS, RDN & Angela Kokkinis, BSN, RN
PolyQLength-Specific Engineering of a HiPSCModel of SBMA Using CRISPR-Cas9 system - Xia Feng, PhD
Silencing of Mutant AR Co-activators as a Therapeutic Approach - Manuela Basso, PhD
Speech and Swallowing in KD: Soup to Nuts - Dr. Neil C. Porter
2016
“IS OUR SHIP ABOUT TO COME IN?”
Holiday Inn Bayside, San Diego, CA (USA)
November 9 - 11, 2016
2015
“The answer may be Blowing in the wind”
Holiday Inn Express & Suites, Chicago (USA)
October 14 - 16, 2015
Click here to view the 2015 KDA Christmas Newsletter which has a conference summary
2014
“Today's Dream....Tomorrows reality”
Holiday Inn - Alexandria, Virginia (USA)
Conference Agenda: Click Here
2013
“It’s a Jungle out There: Together, the KDA Family is Strong”
Holiday Inn - Bayside, San Diego, California (USA)
KDA-eXpress Conference Newsletter: Click Here
November 6-8, 2013
2012
"New Possibilities, New Friends, New Orleans"
Harrah's - New Orleans, Louisiana (USA)
KDA-eXpress Conference Newsletter: Click Here
October 10-12, 2012
2011
"Sex, Drugs and Helpful Hints"
Bowie, Maryland (USA) - at the Comfort Inn & Conference Center
November 9 - 11th, 2011
Video of some of the research presentations
2010
"Closer than ever before"
The Ten Year Anniversary of the KDA
San Diego, CA (USA) - at the Holiday Inn - Bayside
KDA-eXpress Conference Newsletter: Click Here
November 10-12, 2010
2008
"Working together to find a cure" (connecting the dots.....)
Join us in Baltimore MD (USA) - at the Marriott Baltimore/Washington Int’l Airport
KDA Conference & Symposium
November 19-21, 2008
2007
"An Eye on Tomorrow"
Las Vegas, NV (USA) - at the Golden Nugget Hotel Downtown
KDA-eXpress Conference Newsletter: Click Here
November 6-8, 2007
2006
"A Reason for Hope"
Atlanta, GA (USA) - at the Holiday Inn Downtown
KDA-eXpress Conference Newsletter: Click Here
October 11-13, 2006
2004
"Edge of Discovery"
San Diego - at the Holiday Inn Select
KDA-eXpress Conference Newsletter: Click Here
October 20-22, 2004
Photos are available for viewing. Click Here to see them.
2003
"Hope for the Future"
New Orleans at the Renaissance Arts Hotel for
November 4-7, 2003
2003 Conference Information: Click Here
2003 Conference Agenda: Click Here
Transcripts
2002
"Reaching for the Stars"
The 2002 KDA Conference & Symposium
2002 Conference Photos: Click Here
2002 Conference Information: Click Here
2001
The Families of SMA donated room space for the KDA to have a meeting June 21-24, 2001 in Chicago, Illinois
We deeply thank Families of SMA for their support of Kennedy's Disease allowing us to "piggyback" with their conference
To visit the Families of SMA Web site: click here.
Photographs of the 2001 conference and those with Kennedy's who attended. click here
