Previous KDA Conferences


“Moving Forward Together”

2020 KDA/KD-UK Virtual Conference

October 14 - 15, 2020

Conference Agenda: Click Here. To view the Q&A from the conference, Click Here

Below are links to a few videos featuring some of the speakers that presented at the 2020 KDA Conference. 

  • Conference Intro and KD-101:
  • Day One Conference Summary:
  • Luca Zampedri, University College London, presents results of a KD patient survey "Priorities in Managing KD Symptoms" that he conducted prior to the KDA/KD-UK joint conference in 2020. To view the video, click here.
  • Physical Therapist Joseph Shrader from the NIH presented exercise recomendations for people with Kennedy's disease. To watch the videos. Click here. 


“Fun in the Sun And Living Well With KD"

Rosen Plaza Hotel, Orlando, Florida (USA)

November 13 - 15, 2019

Conference Agenda: Click Here. To view photo's, go to our Facebook page. Click Here.


“Solving the KD Puzzle"

San Diego, California (USA)

October 31st - November 2nd, 2018

Conference Agenda: Click Here

2018 KDA Research Presentations

KD Research in London UK

Kennedy’s Disease Support Groups

Tips and Tricks for Swalling Issues with Kennedy's Disease

Jameson Parker's Tips and Tricks

Using Exercise and other Physical Therapy Interventions to Optimize Functional Mobility

Don't Forget the Women 


“Caucusing For A Cure"

Holiday Inn in Old Town, Alexandria, Virginia (USA)

November 8th - 10th, 2017

Conference Agenda: Click Here

2017 KDA Research Presentations

Genetics Review and Reproductive Options in Kennedy Disease - Alice Schindler, MS & Heather Montie, PhD

PSC/CRISPR Platform at the Montreal Neurological Institute - Lenore Beitel, PhD

Kennedy Disease and Pulmonary Considerations - Noah Lechtzin, MD, MHS

Kennedy Disease 101 - Ed Meyertholen, PhD

Maximizing Functional Independence - Kathy Farrell, MS, OTR/L

Metabolic Changes in SBMA - Dr. Andy Lieberman

Nutrition and Kennedy’s disease - Marnie Dobbin, MS, RDN & Angela Kokkinis, BSN, RN

PolyQLength-Specific Engineering of a HiPSCModel of SBMA Using CRISPR-Cas9 system - Xia Feng, PhD

Silencing of Mutant AR Co-activators as a Therapeutic Approach - Manuela Basso, PhD

Speech and Swallowing in KD: Soup to Nuts - Dr. Neil C. Porter



Holiday Inn Bayside, San Diego, CA (USA)

November 9 - 11, 2016  


“The answer may be Blowing in the wind”

Holiday Inn Express & Suites, Chicago (USA)

October 14 - 16, 2015

Click here to view the 2015 KDA Christmas Newsletter which has a conference summary

Conference Agenda: Click Here


“Today's Dream....Tomorrows reality”

Holiday Inn - Alexandria, Virginia (USA)

Conference Agenda: Click Here



“It’s a Jungle out There: Together, the KDA Family is Strong”

Holiday Inn - Bayside, San Diego, California (USA)

KDA-eXpress Conference Newsletter: Click Here

New Orleans,Louisiana

November 6-8, 2013


"New Possibilities, New Friends, New Orleans"

Harrah's - New Orleans, Louisiana (USA)

KDA-eXpress Conference Newsletter: Click Here

New Orleans,Louisiana

October 10-12, 2012


"Sex, Drugs and Helpful Hints"

Bowie, Maryland (USA) - at the Comfort Inn & Conference Center

November 9 - 11th, 2011

Video of some of the research presentations


"Closer than ever before"

The Ten Year Anniversary of the KDA

San Diego, CA (USA) - at the Holiday Inn - Bayside

KDA-eXpress Conference Newsletter: Click Here

November 10-12, 2010


"Working together to find a cure"  (connecting the dots.....)

Join us in Baltimore MD (USA) - at the Marriott Baltimore/Washington Int’l Airport

KDA Conference & Symposium

November 19-21, 2008


"An Eye on Tomorrow"

Las Vegas, NV (USA) -  at the Golden Nugget Hotel Downtown

KDA-eXpress Conference Newsletter: Click Here

November 6-8, 2007


"A Reason for Hope"

Atlanta, GA (USA) -  at the Holiday Inn Downtown

KDA-eXpress Conference Newsletter: Click Here

October 11-13, 2006


"Edge of Discovery"

San Diego -  at the Holiday Inn Select

KDA-eXpress Conference Newsletter: Click Here

October 20-22, 2004

Photos are available for viewing. Click Here to see them.

Conference Agenda: Click Here


"Hope for the Future"

New Orleans at the Renaissance Arts Hotel for

November 4-7, 2003

2003 Conference Information:  Click Here

2003 Conference Agenda:  Click Here


J. Paul Taylor, M.D., Ph.D.
NIH, Transitioning to University of Pennsylvania, Philadelphia (USA)
Andrew Lieberman, M.D., Ph.D. - University of Michigan (USA)
Nicholas Di Prospero, M.D., Ph.D.
National Institutes of Health, NINDS (Bethesda, MD)
Jean-Marc Gallo, Ph.D.
King's College, London (England)


"Reaching for the Stars"

The 2002 KDA Conference & Symposium

2002 Conference Photos: Click Here

2002 Conference Information: Click Here


The Families of SMA donated room space for the KDA to have a meeting June 21-24, 2001 in Chicago, Illinois

We deeply thank Families of SMA for their support of Kennedy's Disease allowing us to "piggyback" with their conference

To visit the Families of SMA Web site: click here.

Photographs of the 2001 conference and those with Kennedy's who attended. click here