Featured Videos

Dr. Fischbeck summarizes Kennedy's Disease and possible treatments during an RDR conference in May, 2015

2015FischbeckRareDisease

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1. Research & Clinical Trials

2. KDA Conferences

3. Personal Stories

4. Other KD YouTube Videos


Research & Clinical Trials

Dr. Montie discusses her research on Kennedy's Disease
at PCOM, Jan, 2016

2016HeatherMontie

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Dr. Grunseich discusses Kennedy's Disease clinical trials
at the NIH, Bethesda, MD

2016ChristopherGrunseich

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 KDA Conferences

2020 KDA Virtual Conference Intro and KD 101

2020KathyThompson 

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2020 KDA Virtual Conference Day One Summary

2020KathyThompson

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2020 KDA Virtual Conference - PT Joe Shrader from the NIH presented exercise recomendations for people with KD.

2020Joeshrader

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 2020 KDA Virtual Conference - Luca Zampedri presented results of a KD patient survey "Priorities in Managing KD Symptoms"

2020SurveyResults 

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Dr. Beitel talks about animal KD models during
2012 KDA Conference in New Orleans

2012LenoreBeitel

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Dr. Meyertholen explains KD for a layperson during
2012 KDA Conference in New Orleans

Ed-Meyertholen

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Sex and all that Jazz: Dr. Romero Sexual disfunction issues for KD men and women. 2012 KDA Conference.

Dr. Maryellen Romero, Ph.D. width=

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Dr. Pennuto explains IGF-1/AKT Signaling in SBMA 2012 KDA Conference in New Orleans.

 2012MariaPennuto

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Re-Visiting KD Free Children - by Cliff Johnston 2012 KDA Conference in New Orleans

2012CliffJohnston

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Dr. Poletti explains Small Heat Shock Proteins in SBMA 2012 KDA Conference in New Orleans

2012AngeloPoletti

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 10 Years After - Dr. Meyertholen talks about the KDA and KD Research 2010 KDA Conference in San Diego, CA

2010EdMeyertholen

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Kennedy's Disease-Free Children through IVF
2010 KDA Conference in San Diego, CA
 

2010CliffJohnston

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Personal Stories

Rare Disease Awareness and Kennedy’s Disease 

2009RareDiseaseAwareness

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 KD and the Waites

2011TerryWaite 

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  Treatment Diary of Mr. Mattheis

2016HansMattheis

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Other KD YouTube Videos

A new handle on Kennedy's Disease IRB Barcelona 2010 Annual Report

IRB-Barcelona

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The UK's First Kennedy's Disease Clinic - 20116

 2016UK-KDAClinic

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 Hand tremor, tongue and perioral fasciculation in a patient with Kennedy disease

 

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Understanding Muscle Atrophy (Muscle Loss) Fitness Exercises 

 2014DrLyoAndDrFernandez

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Biologist Neville Sanjana explains one concept in  5 levels of Difficulty - CRISPR
 
NevilleSanjana
 
 
 
 
 
 
 
 
 
 
 
  

 

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