Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"As a mother with a son who has KD, I appreciate those of you who are so dedicated to informing the public of this rare and difficult disease."

Current Scientific Review Board Members


fischbeck_1 Dr. Kenneth Fischbeck

National Institute of Neurological Diseases and Stroke
A leading researcher, professor and educator on the subject of Kennedy's Disease; a co-discoverer of the Spinal Bulbar Muscular Atrophy gene.


Dr. Diane Merry

Thomas Jefferson University

Dedicates research team to Spinal Bulbar Muscular Atrophy



Dr. Al La Spada

University of California, San Diego

Co-discovered the Spinal Bulbar Muscular Atrophy gene and continues to research Kennedy's Disease


Dr. Andrew P. Lieberman

University of Michigan

Researcher in the area of inherited neurodegenerative diseases.  Director of the Neuropathology Core for the Michigan Alzheimer's Disease Research Center



Dr. J. Paul Taylor

St. Jude Children's Research Hospital, Memphis, TN

Research focus is on reducing the morbidity and mortality associated with neurological disease



Dr. Cindy Jordan
Michigan State University

Dr. Jordan has had a strong research interest in the effect of sex hormones on the brain and behavior. This research led her to discover that Kennedy's Disease affects the muscles dirrectly so that treatments targeting the muscles alone can be successful


This email address is being protected from spambots. You need JavaScript enabled to view it. - Patient Liaison 

Assistant Dean and Director of Pre-Health Programs at Georgetown College, Georgetown University, Washington, DC. - Ed is a person living with Kennedy's Disease