Kennedy's Disease Association

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Kennedy's Disease Chat Transcript   02-04-12

Topic:  Open Forum

Host:  Bruce Gaughran

 

Bruce
Morning Stan
Stan
Morning
Bruce
How are things up in Michigan this morning?
Stan
Cold. No snow. Still tired and achy
Bruce
My daughter in MN continually comments on how strange this winter has been.
Stan
Yes, this has been a strange winter. I'll take it.
Bruce
We are wet again ... one of the wettest winters on record, but very mild with nights in the 40s and 50s and days in the 60s.
TerryW
Hello
Bruce
Morning Terry and David
David
Good Morning Bruce and Stan
Stan
Hi, David, Terry.
David
Hi Terry
Bruce
Terry, do you have any snow yet?
TerryW
Bruce,  still trying to get used to outlook
TerryW
No snow
TerryW
having problems with the address book
Bruce
I don't use it except on the server.  I use Thunderbird and really like it.
TerryW
I have almost got everything back up & running
TerryW
WHo here has a Sams club membership
Bruce
I was really lucky when I lost my hard drive.  The mirror image I had on the external drive reloaded on the new drive without a hiccup.  Everything worked perfect.
Stan
Wife does.
David
We do not have a membership, why?
Bruce
We do, why?
TerryW
If you are a member Sams club has a tech support number here in the USA that provides members with tech support on their PC even if they did not buy it from them
TerryW
They are great techs
TerryW
877 758-4346
Stan
I am my own tech support
Bruce
CostCo has a similar tech service, but you have to buy it from them. They are quite good and also offer another years warranty on all computers and TVs.
Bruce
Stan, you need a 1-800 number ...
TerryW
they resolved a couple issues I had and were very friendly & knew their stuff
Stan
No I don't. Enough people call me already.
Bruce
We are getting ready to go 21st Century by adding a tablet and router.  I sure hope it isn't too complicated to set up the router.
David
It is good to know there is "Stan the Tech man" on the chats
TerryW
Bruce is that mirror recover a program that you bought
Bruce
Yes, Acronis True Image was worth the money.
Bruce
It performed flawlessly.
Stan
Ethernet ot wireless, they are pretty easy to set up. Just me require a call to your ISP
David
I set up our wireless router with out too much difficulty quite a few years ago and we have replaced the computer three times without any trouble so you should be OK
TerryW
Bruce adding a router is fairly easy,  With the software that comes with it it pretty much sets up itself
TerryW
also the pads do
Bruce
My wife wants a tablet so she doesn't have to wait for me to get off the computer to use it for emails.
TerryW
same here for me
Stan
Tell them to go to the library. : )
David
Do any of you use an eReader? I love to read books and friends have been encouraging me to get one
TerryW
we have 2 pads,  we sit on the couch and now talk to each other thru them LOL  what's this world coming to?
Bruce
I was reading several articles on routers and also looked at Amazon ratings for routers.  It is confusing to a non-tech guy, but 802.11"n" is what I need with WP2 and IPv6 capability if possible.
TerryW
no david
Bruce
David, I use a Kindle and love it.
TerryW
I have always used a Linksys
David
Lynksys the router we have as well
Bruce
I found that I enjoy reading from the Kindle more than from a book.
Bruce
It sure is nice to take with you when shopping.
TerryW
I hope Angela remembered
Bruce
What model Linksys do you guys have?  I heard that since Cisco bought them that the quality has not been there. ???
David
Thanks Bruce, I am going to look into the options it may be time to take that next step into the "high-tech" life.
TerryW
I have an older model G-series
TerryW
I think the latest is N
Bruce
ebook prices have gone up unfortunately, but there are still a lot of free and lower cost books.  Soon, our library will allow you to rent library books on your Kindle.  That will be neat.
David
Mine is a Wireless G Broadband Router 2.4 GHz
Bruce
I found it interesting that in 2010, ebook sales were greater than regular books.  It just shows how the world is changing.
David
We were at the Hamilton County Ohio library yesterday and they had a sign stating that they had over 19,000 eBooks available so that will be something to consider
Bruce
Yes, David, the process is so simple.  I like the Kindle, but I heard the Nook is quite good also.
David
I have also looked at the Sony reader, it claims to be ad free
Bruce
My Kindle has the built in 3G network.
Bruce
My PC is 3 years old and recently I contacted Dell Support about upgrading to Win 7.  The tech told me to wait and buy a new computer first with Win 7 akready added.  He said three year old PCs are antiquated.
TerryW
I have got to go get ready,  we have someone coming to do a deep house cleaning.  I have got to go shower before she gets here
TerryW
nice chatting
Bruce
David, I also have several friends that have Kindles and they all love it.  The text to speech is nice.
Stan
See ya
Bruce
Stan, did you read my blog article for Friday?
David
I had resisted for years upgrading to a new PC at home because I did not like the new office software and operating systems we had to use at work.  Then last month we made the jump to a Window 7 machine with the Intel i7 processor.  The increased speed and ease of use has been worth the new learning curve
Stan
I glanced at it, Bruce.
Bruce
I like Office 2010.  It is easy and powerful.
David
Bruce I have not read your blog, what is the subject?
Stan
I update and change when, if I need to, as I can afford to.
Bruce
It is a little different.  It was about the five most regrets people on their death beds discuss.
Bruce
It was fascinating to me because three hit home and made me really think.
David
I should have mentioned that I took advantage of a special sale at Staples, the computer was about $700, much less than any of our prior new PC purchases
Bruce
People wished they wouldn't have worked so hard and spent more time with family and friends.  People wished they would have been more true to themselves versus trying to live up to others' expectations.
Bruce
I believe most everyone waits for the sales because there are so many.
David
I will check it out later today.  By the way to prove my lack of tech skills.  I cannot seem to figure out how to leave a comment on your blog, I guess I do not know what the various sign-in options mean.
Stan
I've been thinking about that, Bruce. Can't say I have any regrets ( legal ones)
Bruce
If you want, David, you can send me an email and I can post it as anonymous.
Bruce
That is good Stan.
Stan
Hey, Luis. What it be?
Bruce
We are now the four musketeers again
David
OK I will do that Bruce.  The most recent one had me remembering time with my Grandfather who must have had KD but was told he had ALS
loshimo11
Good morning everyone. This is loshimo11 joining in late from San Francisco.
loshimo11
Big crowd....
Bruce
We had dozens on earlier, but when they saw Luis wasn't on they dropped off.
Stan
lol
loshimo11
:}
Bruce
Luis, we were talking high tech stuff today ... PCs routers Win7 etc.
David
Hi Ted
Bruce
Morning Ted A
Bruce
TedA, did you get your new chair yet?
Bruce
It appears Ted is having trouble this morning staying connected.
Bruce
Well, guys, on January 17, I became a great grandfather.  Chase Thomas is a healthy young boy.
Stan
Congrats!
loshimo11
Congratulations Bruce!!!!
David
Congrats Bruce on that new little one!!!
TedA
Yes I am having some trouble.   Nothing that I can not handle!
Bruce
My sister calls me a living medical miracle since I am only 39 and now a great grandfather.
Bruce
TedA, did you get your new chair yet?
Bruce
I don't know about you, but the older I get the more precious the little ones are.  They are our future!
TedA
Yes I did.   It is an e-fix, a manual wheel chair with power hub wheels, a battery and a joy stick.
MikeG
Kennedy's Disease Chat
David
HI Mike
Stan
Hi, Mike
Bruce
TedA, well, how do you like it?
MikeG
Howdy everyone
loshimo11
Hi Mike.
Bruce
Mike, we needed you earlier, we were talking high tech stuff.  You and Stan could have blown us away with your knowledge.
MikeG
probably not... :)
MikeG
congrats on the baby Bruce!
Bruce
Remember that February 29 is Rare Disease Day.
Bruce
Thanks everyone.
MikeG
I've been trying to install the new WebRoot Complete... :(
MikeG
what a joke!
David
Well at least you know what it is and am not even sure why you would want one.
loshimo11
Is that some type of gardening tool?
Bruce
Luis, I love your sense of humor.
TedA
It is nice.   More comfortable and manuverable than the scooter.    I stll have my big power chair which I use at home.
Bruce
TedA, I guess you don't need a power lift seat.  I couldn't function very well without mine.
MikeG
in case everyone has not heard - Jon Lickey fell and broke his shoulder... :(
Bruce
That is terrible news!
loshimo11
Broken shoulders are no fun...
MikeG
and Len Janicki had a reaction to a drug he was given for a uniary tract infection.
TedA
I have it on my big chair and it is very  useful at home as I get up and down a lot. The scooter and e-fix are lighter weight and easier to take places.    I also only get up 1 or 2 times.  One being when I load it back on the rear lift to put it in the van.
Bruce
BTW, is Len recovering okay?
MikeG
I heard he was better but having a hard time transferring
Bruce
Morning Fergior
Bruce
How is the weather in Spain today?
Bruce
Arm strength is very important.  I can't imagine how difficult it would be without being able to use your arm around the house.
fergior
Hi all
fergior
I am late, pardon
Bruce
Better late than never
fergior
yes
loshimo11
What time is in Spain now?
MikeG
John Coakley suggested a pivot ring for Len - but it may not be large enough for him to stand on... he said he's bow-legged.
David
Hi Fergior glad you could join us
fergior
no
TedA
Bruce, also they put the biggest size wheels and the thickest seat cushion to get me as high as possible to make it as easy as possible to satnd up
Bruce
What is a pivot ring?
MikeG
it's a ring you stand on when transferring from the char to a recliner.
fergior
I had in last May an heart attack
Bruce
Okay, that would diffinetly help.  My old chair had several custom options to raise the seat height for me also.
Bruce
How are you recovering Fergior
MikeG
Len said he can't turn anymore - and Jeanne can't handle him.
fergior
now, ifeel fine, but they had to make me a surgery
fergior
Traqueostomie
Bruce
Wow, that is too bad.  I have seen a lift advertised that actually lifts you from the sitting position to the standing and visa versa.
Bruce
Good to hear you recovered okay.
MikeG
yes, but it was too big for some of their rooms
fergior
yes, thank you the raqueotomy fot me, now is a life security
fergior
no pronlems whith breath
Bruce
I feel for Len.  My brother, late 70s with KD, is having real problems with his strength and needs one person on each arm to stand, shift, move, etc.
MikeG
yep
MikeG
that's really hard to take
Bruce
Good to hear Fergior.  You need to take care of yourself.
fergior
Bruce, thats is my actualsituatión at 63,s
MikeG
Jeanne has hired someone to help him get around
Bruce
It is hell to get old!
loshimo11
Getting old is not for wimps...
MikeG
but it's better than the alternative... maybe.
Bruce
Fortunately, at 39 I don't have to worry about it for several years.lol
MikeG
right!!!  :)
Stan
I got at least 10 more years.
Bruce
I consider quality of life an important factor in the equation.
MikeG
definitely
fergior
I move in electric Wheelchair since 1999
MikeG
well, it's a beautiful day in FL - 75 going to 84 today!  Spring has sprung here...
Bruce
Fergior, yes, there a several of us that use a chair for safety and mobility issues.
MikeG
gotta run - take care everyone!
David
I think Angela mentioned that KD'er are a stubborn lot and I think that helps with the getting old
Bruce
Thanks for joining us Mike
David
Bye Mike
Stan
Sure, rub it in, Mike
fergior
In Madrid now at 17,23  -4ºC
loshimo11
Take care Mike.
Bruce
Boy, that is an insult ... but so true!
David
Yes but she said it with a smile
Bruce
I think it goes back to the fact that KD is a slowly progressive disorder.  We have time to adjust.
TedA
Bye everyone.     Stay up right!
Bruce
Thanks TedA
TedA
Connection reset by peer
Stan
OK. See you all later. Take care.
loshimo11
Time for breakfast here in the West coast. Stay safe and upright everyone!!!!
Bruce
I know there are days when the body just does not want to work right and that becomes frustrating.
fergior
bye at all
Bruce
Take care Stan
David
I agree with the time to adjust and am still leaning each day what it means to adapt to what for me is a new reality
Bruce
Take care Luis
Bruce
Yes, that is the reality of the situation.  Adjust, evolve or perish.
David
Well gents it looks like our time today is almost at an end.  It has been good chatting with you.  Until next time, take care and be safe.
Bruce
I still think back on what people with KD experienced 50 or a 100 years ago.  It must have been hell.
David
You are right about that Bruce, the not knowing what it was and why would have been very difficult and trying
Bruce
My uncle lived on a farm with three stories and steps everywhere.
David
My grandfather was a postman and to give up working was a great trial to him.  But he also showed me that adapting was just part of life
Bruce
David, thanks for joining us today.  Stay well and upright.
David
Bye Bruce