Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"I found the superbly informative KDA site intially by googling Kennedy's Disease. The chat rooms are very informative and inspiring."

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Kennedy's Disease Chat Transcript   03-19-2011

Topic:  Open Forum

Host:  Lou Tudor

loutudor
Sorry...computer problems
poohsdaddy
Good Morning Lou & Stan
loutudor
Good morning...
loutudor
I'm glad I started early logging in...
loutudor
How do you like the website improvements?
poohsdaddy
I haven't checked it out yet, but hope to have more time for it this week.
loutudor
Good morning all!
loshimo11
Good morning everyone. This is loshimo11 joining in from San Francisco.
loutudor
Glad to see we have a group this morning...
paul sramek
Good morning from Dallas
poohsdaddy
We babysit our grandson almost full-time while our son and his wife are working.
loutudor
Loshimo, any problems out your way from Japan?
loutudor
Morning gary and Paul
loshimo11
Emailed my cousin who lives in Tokyo. He said that was the worst experience in his 47+ years of his life. Luckly, everyone was fine!!!
poohsdaddy
We found out that we're going to have our first granddaughter in July.  Had all sons and grandsons so far.
Gary_KC
Good morning all. This is Gary joining in from Kansas City. It is almoist spring in mid-west.
loutudor
Horrible disaster...
Stan
I'm back, got my coffee. I see we have some people here now. Hello everybody
loutudor
Hey Stan!
loshimo11
The earthquake, the tsunami and now the nuclear problems... Not a dull moment..
loutudor
It seems the nation is really handing emergency well...
Stan
That is a real scary situation in Japan,
loshimo11
Was Terry logged on earlier? He was not feeling well a day or two ago... Hopefully, he's OK.
poohsdaddy
There were a few guys lloking for the chat last week....  Hope they come back today too.
loutudor
I haven't seen Terry here today...
loshimo11
Must've been my imagination... The radiation must be giving us Californians hallucinations...
loutudor
Does everyone know to vote on Facebook for Susanne Waite?
Stan
Terry is ok according to his last FB post, but then he twisted his ankle when his leg gave out.
poohsdaddy
Is it similar to the Pepsi challenge ?
Stan
Wife and I already voted for Susanne.
loshimo11
Me and my evil twin voted for Susanne yesterday.
loutudor
The Energizer contest requires just one vote...you can link to it from the KDA Facebook
poohsdaddy
How often or how mant times can we vote ?
loshimo11
poohsdaddy... already tried voting twice... the bunny won't let you.
loutudor
I had no problem voting...just click "like" next to her name on the left side when you get to the Energizer site
poohsdaddy
ok... will do .
loutudor
It was out of commission a couple days ago...please try again
poohsdaddy
Is the voting open to everyone ?
Stan
My kids, brother-in-law and a nephew are supposed to vote too.
loutudor
If she wins, she will donate to KDA!!
poohsdaddy
What can KDA get ?
loutudor
Way to go Stan!!
loutudor
...at least $1,000...could be up to $5,000
loutudor
Anyone with a Facebook acct can vote
loshimo11
poohsdaddy... There's some cash involved but I think, the KDA would get great exposure!!!
poohsdaddy
Sounds like I'll have to forward the infi to my e-mail list.
loutudor
People around the world need to know we exist
Stan
The KDA is already getting good exposure. The local paper there picked up on it and did an article on Susanne and the KDA.
loshimo11
Stan... was this article only on hardcopy or do you know if it's available online?
loutudor
We are also designing some new KDA t-shirts...good exposure and we hope for big sales!
loutudor
It would also be available online...Terry put a link to it on his Facebook page too
loshimo11
Love the KDA shirts. Sign me up for at least one, maybe more.
Stan
I read it online. Sierra Star.
loshimo11
Will have to check it out. Thanks!!!
poohsdaddy
Assorted sizes and colors with the KDA logo ?
loutudor
All will know as soon as those shirts are ready...going to do a new cookbook
loutudor
Yes and Yes
loutudor
Does anyone here not get e-mails from KDA?
poohsdaddy
Lou, are you looking for recipes ?  My family did a cookbook from our last family reunion.  Everyone liked it.
loutudor
A letter is ready to go out...right after Suzanne's contest
poohsdaddy
;)
loutudor
We won't repeat any recipes from the previous book...all new!
poohsdaddy
I didn't know there was an earlier book...  Are copies still available ?
loutudor
We are also preparing to put out a Spring KDA newsletter...anything specific you'd like to see or contribute??
Stan
It's under "features" from the paper's online heading. The "Energizer Bunny" article, not the "Wild Women of the West."
loutudor
Thanks, Stan..that was confusing :D
loshimo11
poohsdaddy... I think the last one was sold at the auction in last year's KDA meeting in San Diego.
loutudor
I can find a copy of the earlier cookbook if anyone is interested...e-mail me  This email address is being protected from spambots. You need JavaScript enabled to view it.  The book is sold out
poohsdaddy
I enjoy cooking. Made lasagne for my wife's birthday; and even followed her recipe. Tasted okay and we ate it, but not quite the same as when she makes it.
loutudor
Does anyone have recipes for soft easy to swallow foods?
poohsdaddy
Sure... I have a number of favorites that I'd be willing to share.
Stan
I have a few because of my needs. Most of it is stuff I can make easily out of a can.
loutudor
Any newsletter requests?  I will do an article on all the fundraising events we will have going on this year...
loutudor
Stan, those would be good to share in the new cookbook
Stan
Bruce asked me to do an article on the new website. Working on it.
loutudor
The new and improved website is great!
poohsdaddy
My older brother submitted the recipe for a "Value Meal" by giving directions the the nearest McDonald's. hahahahahaha
loutudor
Good morning stewart!
loutudor
gotta love some humor! :)
stewart
Good morning all abit late sorry
loutudor
no problem...happy you joined us
poohsdaddy
Ditto... the more the merrier !!
loshimo11
The new website is indeed great. The only thing I've noticed is that the forum is not as active as it was in the past. Is it just me imagining things again?
loutudor
Maybe we need to advertise that in the newsltter...thanks
Stan
No Luis. I think a lot of people don't know where it is. It will be in my article.
loutudor
Hey terry!
TerryW
[b]Hello all sorry I am late
loutudor
Thanks Stan!
loshimo11
Terry!!!! We were just talking about you earlier!!! How are you feeling?
loutudor
How's the ankle Terry?
TerryW
[b]fell yesterday and am very sore
TerryW
[b]hurts to moove
TerryW
[b]I felt better last night but this morning not
poohsdaddy
Hope you didn't break anything
TerryW
[b]i don't think so
TerryW
[b]been tryig to get susanne lots of votes to get her into 1st place
loutudor
We've been promoting that here this morning too...
loshimo11
Terry... I know how you feel... I fell down last Christmas morning snooping around the tree checking out the presents and broke my toe. It led to a quick visit at the local ER. Not the way to spend Christmas day.
TerryW
[b]she is 39 votes behind
loutudor
Please verify...one vote per person, right?
TerryW
[b]yes
TerryW
[b]I Private messaged everyone on my friends list with the link
Stan
Can I use my alter egos, personalities?
loutudor
That makes it easy!
TerryW
[b]they all voted
TerryW
[b]yes
poohsdaddy
I'll have to "post" it on my Facebook Wall; and e-mail my friends too.
TerryW
[b]I think
TerryW
[b]Well, not sure onthat
Gary_KC
Yes, I will vote today. :-)
loutudor
Let's all put this on our own Facebook pages today!
TerryW
[b]thanks
poohsdaddy
Good idea !!
stewart
I'll vote today also
TerryW
[b]so what has the topic been today
loutudor
39 votes behind isn't much...we have to make sure she wins!
loutudor
The new cookbook...
TerryW
[b]we sent out an e-mail to all KDers but have not seen much voting
loutudor
We'll also include soft easy to swallow foods...
TerryW
[b]her votes have stagnated and others are catching her brom behind
TerryW
[b]from
TerryW
[b]I wonderr why
loutudor
Not all have Facebook accts, unfortunately
TerryW
[b]:(
loutudor
Can you see the names of those of us who voted?
TerryW
[b]they should forward the e-mail to their kids & such
TerryW
[b]no lou
poohsdaddy
Yea, I have several family members and friend who aren't on Facebook. I e-mail them often.
Stan
If  it wasn't for all the voting opportunities and such on FB, I'd cancel mine.
loutudor
Please keep those facebook accts...makes for fast communication
poohsdaddy
I play some of the games.... and ignore a lot of the postings.
loutudor
It's easy to shut out what you don't want...
Stan
Not really, Lou. It seems that posts from people 4,000 mile away I see immediately. Posts from people 100 mile away i may not see for a day on FB. Strange.
TerryW
[b]Facebook sure got the word out when I had my emergency in Nov
loutudor
I meant you can de-friend people w/o them knowing...
poohsdaddy
What have I forgotten ?
TerryW
[b]or just plain hide them
loutudor
Right...some folks put out waaayyy too much info...
Stan
I don't play any of the games on FB. Now if they paid SS credits, that would be different.
poohsdaddy
:)
loutudor
Any other requests for the upcoming newsletter...
poohsdaddy
Any new research or clinical studies ?
TerryW
[b]I am gonna go lay back down,  sorry everyone :(  I am not much fun this morning
loutudor
Rest Terry
poohsdaddy
Hope you feel better soon !!
loutudor
Anything new will be in it...
loshimo11
loutudor... how do you de-friend people in FB w/o them knowing? I know how to ignore their posting but was not aware you could de-friend them.
loutudor
There is instruction on your facebook acct page...
loshimo11
loutudoe... Thanks!!! I'll look into it.
Stan
Well, that explains a lot.
loutudor
e-mail me if you still have problems  This email address is being protected from spambots. You need JavaScript enabled to view it.
poohsdaddy
Thanks everyone.... Time for me to watch our grandson.  See you again next time.
loutudor
Sorry Stan..I don't remember w/0 looking at the page :D
loutudor
Bye for now...
Stan
See you later Poohsdaddy
loutudor
So is it Spring yet in your area?
Stan
Lou, I meant that explains a lot about why I don't see a lot of posts
paul sramek
See you all next time, working on floor bids.
loutudor
No one would dare de-friend you!
loshimo11
We had a very dry January here n San Francisco, but we're making it up this month.
Stan
Bye Paul
loutudor
Thanks paul
Stan
Sure they would. All the time.
loutudor
Losh, glad you didn't get the storm effects..
stewart
I just voted Susanne is on the last page 10 of 10
loutudor
Glad to hear the voting page is working great...
loshimo11
I smell bacon!!! Gotta go very soon!!! Stay healthy and upright everyone!!!!
loutudor
enjoy breakfast...it's alsmost lunch here...
Stan
Ok Luis
Gary_KC
I got go too. Enjoy spring weather, please.
loutudor
bye Gary
Stan
Take care Gary
loutudor
Bye Stewart
Stan
OK stewart
loutudor
Hey Stan...glad to see the t-shirts are lookin good
Stan
These chats are ending earlier and earlier.
loutudor
When it's an open agenda
Stan
Don't thank me Lou. Carla does the work online. I just critique
loutudor
Good feedback!  I use my family too...they tell honestly
loutudor
The shirts will be done in plenty of time for the May 15 car show...
Stan
She gets so many ideas and wants to try them all. Then it makes it harder to choose because there are so many designs to pick from.
loutudor
I believe we'll do a searate shirt for the car shows
loutudor
separate...
Stan
OK, I'll let her know. She'll be sending more emails, I'm sure.
loutudor
Great hearing from you today, Stan...you liven up the chatroom!
loutudor
Please tell Carla I'll be in touch
Stan
Thanks. I try.  I guess I'll log off and see what I can get into while Carla is shopping. :}
loutudor
Take care, Stan...bye for now