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Kennedy's Disease Chat Transcript 04-07-2007
Topic: Open Forum
Host: Terry Waite
TerryW entered the room.
craig_h entered the room.
craig_h: morning Terry
craig_h: how are you ?
TerryW: I am doing good. rested
craig_h: that's good
Michael17860 entered the room.
TerryW: Hi Michael
chumar entered the room.
Michael17860: Hi all, How is everyone
craig_h: we just went from 70-80 degree weather to 20-30 ........... throwing my system for a loop
TerryW: Hello Chumar
chumar: Morning all
TerryW: Wow craig, we just warmed up here
craig_h: hi michael ............. hi chumar
TerryW: I hate the cold
Michael17860: Its a cool 35 here today in PA
Murf entered the room.
robazbob entered the room.
TerryW: Hey Murf
Murf: Morning all
TerryW: Hey Rob
craig_h: howdy did your spring action milking stool work out?
robazbob: good morning all
chumar: Morn Murf
chumar: Morn Rob
Murf: morning chuck
TerryW: Craig, it did not work, I needed something to sttill push off of to get up from the seated position
TerryW: I sent it back
craig_h: dang, was hoping it was a break thru development !!!
Gary_KS entered the room.
TerryW: I wish it would have worked
TerryW: Hi Gary
chumar: //23 brb
billeric entered the room.
Gary_KS: Good morning, all. Gary Uchiyama joined from Kansas City.
TerryW: Yesterday we went to the local Hillside Iris Gardens and I forgot my walking stick and I had to crawl up steps to each level
Gary_KS: Hi Terry.
craig_h: oh fun Terry ........... but you got better guts than me, I wouldn't of tried that at all
TerryW: Susanne stood by some of the steps to allow me to grab her shoulder to get up some
billeric: Good morning guys. Wonderful Arizona morning.
Michael17860: Terry you should invest in knee pads Ha Ha
Murf: How can you forget a cane??
robazbob: sure is bill
TerryW: I keep trying even though I may not be able to I still try
TerryW: I was loaded with camera gear murf
TerryW: too some great pics
Murf: Thats what I've got a chair for ...LOL
TerryW: the hillside gardens are not accessible
Murf: Almost fully chair bound now
TerryW: it is someones private property
Michael17860: At least you keep trying Terry. never give that up...;.
TerryW: they open it up for free
Murf: don't fall
TerryW: I fell a few times last week but I am still together
Murf: I got sick of breaking bones
TerryW: I fell under the horse again
TerryW: He spooked and I thought i was a gonner
billeric: These falls are miserable. Had one this week-no damage thankfully
chumar: Terry, sounds like you get around alot
PA-PAUL entered the room.
craig_h: that article about the Curry thing was pretty wild, huh ?
Butch entered the room.
Murf: Jan I fell and broke my ankle and tore a tendon
Michael17860: HI Paul
PA-PAUL: hello ALL
TerryW: I was taking his blanket off and the other horse let out a loud scream next to us and the horse I was unblanketing ran around inside its stall with its blanket fragging behind it while I layed on the ground, I thought i was going to get trampled
Butch: Good morning all. Happy Easter.
chumar: Hi Paul,Butch
Murf: Ankle is healed somewhat and tendon is still sore
TerryW: That is good Murf
Murf: Falling hurts and I'd rather not do any more of it
chumar: Gee what a way to go
Murf: I will be oredering another chair which will made 3
PA-PAUL: I agree with Craig_h any more info on it????
TerryW: the horse got free from its blanket right before it got back to me and it stopped just short of me
Butch: Falling isn't good but it keeps us looking UP. LOL
craig_h: yeah paul, I'd love to see more info about that
billeric: Any updates on the NIH trials?
TerryW: 3 chairs murf>
Murf: one for the office
Murf: one for the house
chumar: Nothing from Saskatoon yet
Murf: one for going for the mail
doughboy entered the room.
Murf: 3 sizes
Murf: my exterra
TerryW: bill, I am not in the NIH trial so I don't really know
chumar: Murf i will have a Quad for you here
craig_h: paul, maybe we are the onlt 2 that actually read it, laffs
TerryW: hi TJ
Murf: a Z-chair from Pride
doughboy: hi yall
Murf: and I have not dicided on the third but will probably be an Invicare M41 or Pride Jet 3
Murf: Hey TJ
doughboy: Murf, you dog, I was sleeping good till you called! LOL!
Butch: You're extremely lucky to be able to have multiple chairs. Makes it a whole lot easier than trying to transport them all the time.
TerryW: Just as long as it's not a Pride Jet Blue 3, You will never get out of it LOL
robazbob: good morning bill I sold my 2006 mustang conv. wednesday night you wouldn't know anyone selling a caddy cheap in suncity would you?
Murf: I'll go down in flames !!!??? LOL
Butch: Hi TJ How are you?
doughboy: Murf, I walked outside just now and it's cold and rainy, ugh!
Murf: Here too
TerryW: Murf, you have any influence in lowering those gas prices?
Murf: 45 in Houston today
doughboy: I'm alright Butch how about you!
Murf: HA HA HA
chumar: Grande Prairie,Canada is 32f
Michael17860: great news on the ASC-J9 compound that DR. Chang is working on.....
TerryW: I am glad I filled up the boat last year before winter 75 gallons
doughboy: I'm 20 lbs. lighter now, did Murf tell you?
Murf: Did you put fuel conditioner in?
billeric: robazbob-I don't have any imediate contacts but the Daily news always has some interesting autos in it.
TerryW: great news TJ, Slim fast?
TerryW: yep murf
Murf: good man!!
doughboy: No nutri-system
Butch: Good for you TJ. How did you do it?
robazbob: bill, I have been looking at auto hunter and the az republic
TerryW: also drained engine block for freeze protection
Murf: Finally started to eat salads
doughboy: Murf got me on it!
doughboy: Bought me a new truck Thursday, did Murf tell you
TerryW: what kind
billeric: robazbob, you might try a wanted ad in the Daily news.
craig_h: is down 30 pounds on Nutri/System now ...... but I need to get serious about it again
doughboy: Chevrolet, the new body style
Murf: billeric: or eBay
TerryW: cool craig
craig_h: Micheal, for sure, I was vert excited reading that
TerryW: DOes anyone still do any work in the garden at all
robazbob: that's a good idea bill i'll try it
doughboy: I tell you, nutri system works because ther isn't much to the meals
Murf: Did anyone hear that chevy was built in Europe now?
chumar: I got a Gold Claim
Murf: TerryW: yup with a telephone
doughboy: Must be why the darn things are so high Murf
TerryW: gold claim?
TerryW: LOL Murf
Murf: Chuck hows it going there?
TerryW: I still do some weed pulling by sitting on my butt but then my hands give out after a short bit but I still try
Murf: find the big one yet?
doughboy: I feel so good I was thinking about going back to work! Nah, April fools
TerryW: I scoot along on my butt
chumar: Ya lol
billeric: How do you get up Terry?
Murf: doughboy: me too...about chevy
chumar: I just need to get it out of the froizen ground
Murf: TerryW: that will make un even rows
TerryW: also I have found out that if you hold your neck looking down for too long you have a hard time lifting your head back up straight
doughboy: My father in law has a 5 acre garden I get fresh veggies from him
jameson411 entered the room.
jameson411: good morning everybody!
chumar: Hi J
Murf: I did that Terry and it scared the hell oput of me!!!
TerryW: Bill I get up like a baby does
Michael17860: I hope that they would start trials on ASC-J9 soon.....
chumar: Ya my neck snaps like bone on bone
Murf: Hey James
billeric: What' that? Slowly?
jameson411: hey Murf...
doughboy: Talk about that Mike if you have any details, please!
craig_h: Michael, didn't that notice say they are testing it on humans for something else right now ?
TerryW: one one knee then but both arms stretched out on groud then the legs spread and then I can barely get up
doughboy: Whats ASC-J9
Murf: I can't do that anymore
robazbob: me either
billeric: Me neither.
TerryW: I still barely can
craig_h: doughboy, it's that curry thing (I think)
jameson411: i can relate to that Terry... i don't think it'll be long before im there
chumar: I can;)
Murf: I think I'm to top heavy
doughboy: Whats that Craig
TerryW: I have heard that the Curry thing makes KDers be able to move faster. You eat indian food and then we run for the bathroom LOL
billeric: If i don't have a stool to get my chest on to- I don't get up.
jameson411: I lol
Butch: LOL Terry.
craig_h: there was a letter that came out about it doughboy. Give me your email and I'll forward it to you
Michael17860: I think that it stated that needed to test it in humans
TerryW: That is a Joke from John Pinnett
doughboy3128 entered the room.
TerryW: he is a funny guy
jameson411: yes.. only rats or mice for now
doughboy has left the room.
doughboy3128 has left the room.
craig_h: guess doughboy got skeered
doughboy entered the room.
Butch: I always move fast when it comes to the bathroom....Don';t want to take any chances.
TerryW: wow how dit TJ do that
jameson411: you want to hear someone funny? Brian Regan...... funniest i've ever heard
Murf: I think he hit the wrong button
TerryW: I will have to look him up on Youtube
chumar: I make $100 bets on Proline here that gets a persons adrenalin going!!1
Murf: welcome back TJ
doughboy: don't know what I did
Murf: took a trip and didn't leave the farm
chumar: You forget about any pain you might have had before the bet
Butch: Where did you go?
craig_h: doughboy, need me to forward you that email ?
PA-PAUL: that testing NOT ON HUMANS seems like a crock... It is a natural compond right already approved by FDA why has it not been tested on humans
Michael17860: Your are right Craig they did state that it was being tested for a different disease.....cancer?
doughboy: Please Craig
jameson411: uranium is a natural compound
jameson411: i won't eat that
craig_h: what's your email doughboy?
chumar: So is Platinum for Cancer
Murf: that makes your poop glow
PA-PAUL: its nbot approved by the FDA
chumar: Heavy too
doughboy: Leave it to Canadians to know about glowing poop! LOL
craig_h: on it's way
PA-PAUL: i am not trying to joke here I am disapointed something that may be helpful is just sitting there
doughboy: Thank you, Craig
Butch: I have been having trouble with tendonitis. Had an operation last year. Reinjured my right shoulder. Of course all KD'ers have trouble getting out of a chair. But, with sore shoulders it is even worse.
craig_h: Micheal, it said it's in a creme for Acne right now
Murf: where do you think the stuff for all our nukes come from TJ?
TerryW: Anyone have a favorite TV show
TerryW: I like House
TerryW: he craxks me up
Michael17860: Paul you are right! No money going into someones hand .....FDA?????
jameson411: Paul, its the idea of "do more good than harm" for medicine.
doughboy: Mine is American idol and Suvivor, Terry
robazbob: terry house bones all the csi's
Murf: Paul whats up?
TerryW: SAnjaya must go!
jameson411: they need to make sure that the side effects are not worse that the cure
Murf: Terry stay on your feet
robazbob: for sure howard stern is not helping that fact
billeric: me too, doughboy
Michael17860: Yes, That is one of the uses Craig.
TerryW: I heard that rob
PA-PAUL: what sde effewcts like too many hot peppers your asshole burns
doughboy: yeah It's been 2 years since I had 2 stop playing
craig_h: paul, eat ice cream afterwards
jameson411: who knows, thats why they have to test it..
robazbob: sanjaya is mentioned on every talk show and there is a website to help him stay
PA-PAUL has left the room.
chumar: I have been watching for 39 years
Michael17860: Terry you can thank howard stearn...................
billeric: Not my favorite razorbob
Butch: TJ--If you stopped playing does that mean you are getting serious. I'll have to warn Tiger.
TerryW: I don't hear Stern since he went to sattalite
doughboy: Hey PA, Jamerson is right you never know what side effects it may have on you or with medicine your currently on!
jameson411: the bummer part about chat rooms is its hard to communicate tone....
jameson411: PA left.
doughboy: Ha! HA!
jameson411: hope he wasn't upset
mobiusloop entered the room.
jameson411: hey mobiusloop
jameson411: are you a math person?
kellyC_ entered the room.
mobiusloop: Hi, everyone
jameson411: Hi kelly
TerryW: hi Kelly
chumar: I'm not and i havn't got a reply yet. LOL
kellyC_: good morning
chumar: Hi Kelly
Butch: Good to see so many here on a holiday weekend.
Michael17860: I heard that after the idol is over, He will be touring with Michael Jackson. (sanjaya)
doughboy: Murf, are your parents still staying with you?
robazbob: very fitting michael
craig_h: hiya Butch, when do you return to Bethesda?
billeric has left the room.
Butch: June 7th.
mobiusloop: Boy, I have a tough time getting up this early
TerryW: early, ?
kellyC_: gosh i slept in myself lol
Butch: How about you Craig?
billeric entered the room.
mobiusloop: No math here
TerryW: where are you
craig_h: wow, would of thought we would of overlapped this time. I'm like May 27 & 28
jameson411: interesting name...
TerryW: I am in Calif
Murf: They just got here last night and will leave Tuesday morning to migrate bak north
chumar: I drove my wife to work at 6:30 am
chumar: Where Murf
johnweeb entered the room.
jameson411: ya, well i'm at work by 6:30 myself ;-)
TerryW: Does anyone have any issues driving and using the brakes
mobiusloop: I get my best sleep from 6 to 8 am
chumar: Oh i used to live there in Manitoba
TerryW: tired on long drives?
jameson411: not yet, but i'm a kd noobie
doughboy: Horses got out on the road this AM, father in law and I were on the road at 3AM getting them back in, took us over an hour!
TerryW: holding up body sitting for long periods
kellyC_: thats a good question terry! at times i have that problem etc..
Michael17860: I have a hard time holding in the clutch at red lights....
Murf: I just rear ended a car last week
Butch: Hardest part of driving is paying for the gas. LOL
doughboy: Terry, my legs get really tired driving very much
TerryW: I get tired on mountain driving because you are always vompensating for the curves with your upper body muscles, really wears you out
mobiusloop: Travel is getting tugh for me too
Murf: I broke my rule not to drive in heavy rush hour traffic
craig_h: after 2 years of no car payments, I got the "fever"............. sigh, got a payment again
doughboy: I second that Butch,
chumar: There goes my idea of a standard
robazbob: me too, in Oct i drove 3000 miles to N.H.--glad I did it but not going to again (can't)
TerryW: sometimes I cant get the gas cap off myself
TerryW: anyone else
jameson411: cash only for me
chumar: Hard time opening the doors
coak entered the room.
Butch: Always a strugle Terry.
jameson411: I'm going to NH today to visit family
TerryW: hi John
craig_h: if I'd of paid cash, I'd have a 1976 AMC Pacer
doughboy: Hey did all of you all hear that Murf just wrecked his new Lexus? He rear ended a lady! LOL!
coak: Hi all!
billeric: Oh, bur you should try a van-robazbob!
Murf has left the room.
jameson411: hi coak
TerryW: TJ you scared him off
Butch: Not funny TJ.
chumar: Hi Coak
billeric: I carry a small crescent wrench-just in case Terry
TerryW: did that really happen?
doughboy: No I'm serious he did
chumar: For the window
robazbob: that's a good idea bill, I think a plane will be the best answer
Murf entered the room.
chumar: Hi Murf
coak: You OK?
Murf: Just got punted
chumar: Oilers fan
coak: TJ is tattle-taleing you, Murf
jameson411: i'm taking a family vaca... driving a rented RV through Yellow Stone!
Murf: How can save the chat as I will not be able too?
TerryW: I will save it
johnweeb: Hey guys, I just got hit by my neurologist. I'm in the early
Murf: Thanks terry
mobiusloop: Flying is he only way, they pick you up at the curb and wheel you through the to the gate
TerryW: John, I thought you could not get in
doughboy: Thanks, John
Murf: First time that happened in a long time
coak: IIh, but no time (again)
chumar: John what was that?
doughboy: Murray while you got punted, I told the guys you wrecked your Lexus they think I'm kidding
johnweeb: My note continues - I'm in the early stages of Parkinson's. Or, do the symptoms mimic Kennedy's?
Murf: nope I put a dint in it
chumar: Murf had a Lexus? WOW
coak: No log-in problems, only time problems (& spelllen ones)
TerryW: I am not sure of that John
Butch: Just so no one was hurt. Right Murf?
doughboy: 2 months old
Murf: no thank GOD
craig_h: johnweeb, I'm not sure at all
Murf: $16000 damage
TerryW: John, that may be a good question at one of the upcoming doctor/researcher chats
Murf: good insurance
chumar: For a Dent?/
Butch: WOW--you must have dented thew ashtray. LOL
coak: Johnweeb -- drop me a line & I'll get back with you early next week to discuss
Murf: not the green brit
TerryW: ty john
kellyC_: Basically i would say so john-weeb
mobiusloop: Does anyone have tingling feet? That is a symptom that is getting worse for me
coak: Butch -- Any snow now that Easter is here?
chumar: Mo, Yes and fingers
TerryW: Mobi, my toes are always tingling or just plain old Numb
johnweeb: Terry, ignore the note we sent to you via e-mail regarding difficulty getting in. We got it to work by tinkering with the password. Glad that Java download wasn't the problem because the computer didn't want to take it.
kellyC_: tingling feet and finger's yup at times i have that to mobius
Murf: mobiusloop: walk sit move around. thats what I have to do to get ride of that
doughboy: Well I gotta leave now guys, dealership has to put my running boards on my new truck this morning, I'll call you later Murf. Everyone take care and be safe!
TerryW: ok Johnweeb
TerryW: bye TJ
Butch: No thank God. We have an egg hunt today. Don't want to hide the eggs in the snow.
doughboy has left the room.
chumar: Bye D
mobiusloop: My back is such a mess that I am not sure what is causing it
chumar: Too much sex, does it for me
Murf: John you got snow too?
Butch: So long TJ. Stay safe.
coak: jameson -- your vacation sounds great!
Murf: Chuck lier...lier...
mobiusloop: It helps to know if others are having the same problem
craig_h: y'all take care..................she ya next time
coak: No snow here -- called for 4" last night -- it went south
johnweeb: Do any of you know about head drop or significant weakness in the neck making it difficult to hold the head up?
Murf: got snow in Dallas last night but none got to here...yet
chumar: Bad las year but good now
craig_h has left the room.
mobiusloop: No , just leg and arm weakness
robazbob has left the room.
coak: Glad to hear from you 2 today. Sold the house & moving in mid-july
TerryW: John yes I get that when I do tasks where I look down for long periods
Butch: John....head drop only because of so many brains, Right?
chumar: Moving? Not Canada i hope
Gary_KS has left the room.
TerryW: If you read a lot
TerryW: or do a tsk that keeps your head in the down position
Murf: Ron thats that top heavy thing
TerryW: the neck becomes weak
Gary_KS entered the room.
chumar: Hi Gary
kellyC_: I have alot of neck spasms to
TerryW: welcome back Gary
kellyC_: and weakness there as well!!
Gary_KS: I was kicked out but I could back.
Butch: Not my problem Murf. Not too top heavy.
chumar: Cold weather Kelly?
coak: I loke Canada - but, no. To a 55+ place in Taneytown, MD; about 20 minutes away drom where I am now.
mobiusloop: Muscle cramps in neck
kellyC_: Actually it starting to warm up here in PA now
coak: bad fingers today
chumar: Still cool here in GP
Murf: fingers must be cold just thinking about it
TerryW: Nice here in Calif
kellyC_: Muscle spasms... yes i get those alot in my neck...
Michael17860: Kelly where in PA.
kellyC_: terry ur lucky lol
coak: In MD we had 75 at Christmas -- It'll be 25 toinight
kellyC_: I'll trade ya lol places
chumar: Kelly How about snapping in neck?
kellyC_: prince albert sask canada
coak: Where is GP?
jameson411: i hate neck cramps...
TerryW: Snapping in neck only occurs in Mafia patients
jameson411: especially when i'm teaching
chumar: Grande Prairie, AB Canada
Murf: 600 miles north of Edmonton
chumar: Km s Murf
johnweeb: Hmm, interesting. We really want to pursue looking into comparisons between Parkinson's and Kennedy's. The doctor has me on some mild meds to see if it will help. The meds havn't helped. So now, with the difficulty holding up my head, my muscles - back and neck- get sore.
mobiusloop: Sorry don't have HBO
Murf: about 1000 mile north of the boarder
Murf: Right kms
TerryW: John do you keep your head in the down and forward position much like reading
coak: thks. I'll have to get the Atlas.
chumar: Closest thing to Kennedy's is Huntingtons
billeric: Got to go guys. Thanks for the chat. Stay upright.
chumar: Murf Who will win Stanleys Cup?
billeric has left the room.
johnweeb: I can't hold my head up now without support. Have to wear a collar part of the day. It started in December.
Murf: I'll send a map to you later, my daughyter lives there
chumar: Oh yea
Murf: what cup?
coak: Huntingtons is close in the biological arena, but different in how it manifests
chumar: Whats her last name?
Murf: another american teamm
Murf: not funny
chumar: lol NYR is mine
Murf: know her?
chumar: First Or last
Murf: Sach Fawn
Murf: first & second
chumar: Not yet LOL
chumar: I'm Married
kellyC_: well got to go everyone.... you all take care and we'll se ya next chat session!.....
Murf: really good then
coak: All -- Have to go now. Best to you all
kellyC_: bye chuck!
kellyC_: yes chuck
Butch: Must go for now. Here is hoping that you all stay safe and healthy till next we chat. Bye!!
Murf: was it something i said?
coak has left the room.
TerryW: see ya
chumar: You too
Butch has left the room.
kellyC_ has left the room.
johnweeb: Bye. Thanks Terry
Murf: did someone ring a bell or something?
jameson411: pavlovs calling
mobiusloop: Yes, thanks Terry.
chumar: Got to go shopping for mining equipment. when i go a don't want to be under a roof
chumar: See ya's all
Murf: Take can Chuck
chumar: You's too soon
TerryW: I am about alll typed out
chumar has left the room.
mobiusloop has left the room.END CHAT