Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"The site is essential for a source for the general public, whenever one encounters the diagnosis of Kennedy's Disease and has no idea what that might be. There is simply no other source as easily available to the public."

Archived KDA News

Clinical Trials Archive (2017 and Older)

 

  1. June 17, 2015 - The results of the Exercise Trial that was conducted at the NIH in Bethesda, MD are in - Click HERE for more information.  
  2. May 21, 2015 - The NIH is now actively recruiting patients for the second phase of the BVS857 clinical trial.  Please click HERE for more information.
  3. March 1, 2014 - Clinical trial for Kennedy's Disease: Dr. Kenneth Fischbeck from the National Institutes of Health was the guest for the KDA chat room. Dr. Fischbeck is a leading researcher, professor and educator on the subject of Kennedy's Disease. The chat focused on current NIH research projects for finding a treatment for Kennedy’s Disease.

Dr. Fischbeck discusses the current trial for BVS857 in the March 01, 2014 Chat

Excerpts from the chat can be found in the Living with Kennedy's Disease blog

The Clinical Trial announcement can be found at the NIH Clinical Trial webpage