Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"I am very glad to see that you have added the personal stories, they are a great help. They give an outlook on what to expect with such a disease. It makes me proud to see people who are willing to express and share their stories with the world, keep up the good work!"


The KDA's mission is to inform, support, educate, fund research, and find a cure for Kennedy's Disease 


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Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50.

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The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts.

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It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments.

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It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers.

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We realize that every charity is asking for support and many have huge overhead expenses including salaries and fundraising costs.

Fortunately, the Kennedy’s Disease Association is an 'all volunteer' organization. Because of the generosity of some of our service providers coupled with no salaries being paid, the KDA’s overhead costs are relatively low considering the services provided.

Since 2003, 92¢ of every dollar spent by the Kennedy’s Disease Association went to funding Kennedy’s Disease Research and Education. 



“Without you there is no KDA”

Operating expenses include the maintenance and upgrading of the KDA web site, our message forum, the chat rooms, office supplies, office equipment, postage, insurance premiums, banking fees, ISP charges, etc.