Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"I am very glad to see that you have added the personal stories, they are a great help. They give an outlook on what to expect with such a disease. It makes me proud to see people who are willing to express and share their stories with the world, keep up the good work!"


The KDA's mission is to inform, support, educate, fund research, and find a cure for Kennedy's Disease 


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Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50.

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The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts.

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It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments.

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It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers.

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KDA Conference and Symposium - "Reaching for the Stars"
October 13-15, 2002

The Kennedy's Disease Association is pleased to invite you to the first KDA Conference and Symposium, "Reaching for the Stars".  

Meet others with KD face-to-face and listen to a panel of leading researchers, specializing in Kennedy's Disease research, speak to attendees about recent research findings and future research plans as well as answer questions from the audience.  We currently plan to have topical sessions in regards to financial and estate planning, family planning and inheritance patterns, applying for Social Security Disability, Qui Gong exercise, mood management, modifying your home, mobility aides and options, and relationships and KD -- as well as a KD individual's, Wives and Significant Others' and Carrier's separate breakfasts.  Please note - the current plans are tentative and subject to change.  However the KDA will attempt to stay as close as possible to this planned agenda.

Also included in your registration fee is continental breakfast, break foods, and drinks served both days for our attendees and an Italian sit-down dinner Monday night will be on-site. Click here to see menu.

Date:                            Sunday, October 13th - Tuesday, October 15th, 2002  
Place:                          Baltimore, Maryland
                                    Visitor Information: 
Conference Agenda:   Click Here
Registration Costs:    $125.00 per person - if registration and payment received prior to August 15, 2002
                                   $150.00 per person - if registration and payment August 15, 2002 or after
                                   Click Here to Register for the Conference
                                   Please note - there are no refunds.
Space is limited and the special conference price is only good until September 12, 2002! Please make your  hotel reservation as soon as possible - Please call the reservation line below and let them know that you are attending the Kennedy's Disease Association's meeting.
Location:                    BWI Airport Marriott -  A 4-Star Hotel  
                                   1743 West Nursery Road
                                   Baltimore, Maryland  21240
                                   United States of America
Reservation Information:    
                                    Cost per night:  $159.00 + tax  (single/double occupancy)
                                    Rooms guaranteed at this special conference price only until 
                                    September 12, 2002 - callers requesting a reservation after the 
                                    cutoff date will be quoted the best available rate at that time.
                                    You must tell them you are coming to the Kennedy's Disease
                                    Association Meeting to get the discounted rate during these dates. 
                                    Make your reservations now!!!  Space is limited.
                                   Hotel Reservation Lines: 
                                            Toll-Free:  1-800-228-9290 
                                            Direct:      1-410-859-8300 
                                  Marriott Policy:
                                  In order to secure a reservation, you will be required to confirm the 
                                  reservation with a valid credit card.  Reservations must be cancelled
                                 24 hours in advance of arrival date, in order to avoid a one-night room 
                                 and tax charge to their credit card. Failure to check-in on your scheduled 
                                 arrival night will also result in a one-night room and tax charge to your 
                                 credit card.  
                                Handicapped rooms available if necessary
                                Complimentary health club and pool on-site
Transportation:          Free Hotel Shuttle to and from BWI Airport and BWI Train Station
                                   The hotel will have a free shuttle that is equipped to handle manual & power wheelchairs.
                                   If driving - complementary parking at the hotel
                                    Here is a link to a company that has access to ramped van rentals for those
                                    traveling with electric wheelchairs that cannot be broken down and fit into 
                                    a normal size vehicle or trunk of a car
                                    The rates for this company seem a little high $99 per day with an 11% Maryland tax with 
                                    100 free miles per day.  Also they are not located at the BWI Airport so they charge a
                                    $95 drop off and a $95 pick up rate.