Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"I am very glad to see that you have added the personal stories, they are a great help. They give an outlook on what to expect with such a disease. It makes me proud to see people who are willing to express and share their stories with the world, keep up the good work!"

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The KDA's mission is to inform, support, educate, fund research, and find a cure for Kennedy's Disease 

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Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50.

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The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts.

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It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments.

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It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers.

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A golf scramble fund raising event is fun!

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In only their 2nd year, the KDA golf scramble committee in Houston has surpassed $32,000 in donations to KDA. The golf scramble is a fun-filled day for all participants and very rewarding for the KDA. The committee has developed a step-by-step process to insure your success.

Golf is one of the fastest growing sports and can be played and enjoyed by the young and old alike. It is a natural way to engage friends and family to come together to support the KDA.

Here is how to hold your own fund raising event

It is not as hard as you might think. The golf scramble team has held two very successful tournaments.  They have documented the steps and action items necessary for you to conduct a Kennedy’s Disease golf scramble in your town.

In addition to being able to provide some guidance, the team can also help support your fund raiser with examples of the following tools and event items:

  • A financial tracking program
  • Forms needed
  • Brochures
  • Web design for online signups and general information

A member of the Houston committee will walk you through every step to ensure you have a successful event.

Should you be interested in organizing and hosting a KDA golf scramble in your town, please contact Ed Noack at 713.416.1511 or This email address is being protected from spambots. You need JavaScript enabled to view it..