Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"This is one SUPER organization and a Non Profit one at that."

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The KDA's mission is to inform, support, educate, fund research, and find a cure for Kennedy's Disease 

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Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50.

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The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts.

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It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments.

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It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers.

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KDA Conference & Symposium in Baltimore, MD

October 14, 2002

 

 Meeting in Chicago, IL - October 14-16, 2015

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Meeting in June, 2001 with Famlies of SMA in Chicago

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Meeting in San Diego, CA - October 20-22, 2004

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These are some of the 2011 Conference Videos that Jack During was kind enough to share with everyone:

Lenore Beitel

Masahisa Katsuno

Ed Meyertholen's Neurology Lesson for laypersons 101+ (everything you wanted to know about KD but were afraid to ask).  Note: YouTube only allows 15 minutes per clip - therefore his hour and a half presentation has been segmented into 6 parts.

Part 1

Part 2

Part 3

Part 4

Part 5

Part 6

Jack recorded many more presentations but, unfortunately,  we were not able to obtain releases from all presenters.  We thank the ones that did give us permission and look forward to doing more like this at future conferences.  Even though it's not a substitute to being there, it's a great way to get conference material out to those who cannot travel.

More Articles ...

  1. Previous KDA Conferences