They say "Laughter is the Best Medicine"...
John A. Coakley, Sr. is an individual living with Kennedy's Disease. His sense of humor shows through every conversation or email he writes. He has written several humorous personal stories of what it is like living with KD.
- A Long Time
- Lamentations, Insights, and Suggestions
- More than you wanted to know
- Proper Perspectives on Life
- In Lieu of Flowers
- Falling down on the job
- I can Still Hold My Own Weight...
- When is Spring Coming?
- Reflections of the past 3 months
- Smiles and Frustrations
- Back to Basic Physics
- The Cocktail Hour and the Dreaded Buffet Line
- It was a Simple Task, But it was Hard to Do
Visitors from 161 countrieshave explored our website this year
*Data supplied by Google Analytics for the period 01/01/14-09/19/14
You can share your experience with the KDA with others by writing to us at Contact the KDA or by clicking on Testimonials below and writing a rewiew on Guidestar.
More KDA Testimonials
"I have only recently been diagnosed with Kennedy's Disease (mis-diagnosed Muscular Dystrophy in the 1980s) and I went searching the internet trying to find out what I could. I quickly found your site and am having a great time informing myself!!!
Thank you for being in cyberspace to meet me at a time of need."
-- Kevin Brennan, Australia
"I thank God there are so many who will share their story to give others hope! My brother was diagnosed with SMA in 1996 and today after a subsequent visit to the doc, they now believe his disease is Kennedy's. I am relieved to know that it's similar to the SMA diagnosis. This younger brother of mine is a very special person and I'd like to have him around for awhile. Thanks to all who have shared their stories."
-- Sharon Durda, Ohio, USA
"My husband was diagnosed with KD last year. He is coping with the thought of having to use a wheelchair in the future. I think this is a good site to have, because it has some encouraging words. Thank you for having it available."
-- Julie Nolte, Minnesota, USA
"My father passed away on September 10, 2002 from respiratory distress, brought on by advanced KD and lupus. I miss him very much. He was in the Ottawa Civic Hospital for almost a month before passing, and almost all of the nurses and doctors did not know about Kennedy's Disease. I want to thank the creators of this website. I referred them here."
-- Elisse Meshake, Ontario, Canada
"Finally diagnosed with KD after 3 1/2 years of testing. Thanks to a wonderful Neurologist and General MD who were equally driven to determine my ailment. That was 4 years ago, and am continuing to walk (slowly) and take care of chores around the house. Thanks to a wonderful family and stubbornness on my part.. I might be slowing down, but not giving up .... Am glad to see finally information being made available about this disease.. THANKS for the website."
-- Robert Antolin, California, USA
"I am very glad to see that you have added the personal stories, they are a great help. They give an outlook on what to expect with such a disease. It makes me proud to see people who are willing to express and share their stories with the world, keep up the good work!"
-- Jennifer Cullen, Ontario, Canada
Associates and friends of our Association who are no longer with us and for whom we grieve and remember...
Terry Allen Waite
Co-Founder, Past Treasurer - 2000 - 2016
1961 - 2016
Thomas J. O'Neill
1948 - 2016
Frank W. Barton Sr.
1944 - 2015
Earl M. (Bud) Goodnight
1936 - 2015
Paul A. Hagenbuch
1946 - 2015
William Z. Toflinski
1934 - 2014
Donald P. Schings
1944 - 2013
Leonard L. Janicki
1948 - 2013
Donald B. Hajec
1937 - 2013
Paul Sramek Jr.
1935 - 2013
Stanley Highe1952 - 2012
1940 - 2012
Past KDA Vice President - 2004-2009
1943 - 2010
1968 - 2010
Charles Edward Rannells
1927 - 2009
1939 - 2008
Allen W. Larsen
1932 - 2008
Abraham Torio Tandoc
1934 - 2007
Jerrold Conrad Brown (Jerry)
1955 - 2007
1949 - 2007
Patrick T. Griffin
Co-Founder, Past Vice President - 2000 - 2002
1950 - 2006
1951 - 2006
Denny leaves behind his loving wife Janet.
1934 - 2004
Ronald (Ron) Leo Martin
Calgary, Alberta - Canada
Roberts G. Hannegan
1919 - 2002
Palm Coast, Florida - USA
Seattle, Washington - USA
Personal Stories of Individuals Living with Kennedy's Disease (SBMA)
Each of the following individuals live with Spinal Bulbar muscular Atrophy (Kennedy's Disease). They have been kind enough to share their personal stories for others so that they can understand the disease on a more personal level. We thank these individuals for their information.
- Mosie Moseremous, Born 1962 - Australia
- Paul France, Born 1968 - England
- Terry Waite, - CA, USA
- Bill Basham, Born 1954 - IN, USA
- Ed Meyertholen, Born 1954 - TX, USA
- Claus-Peter Czaya, Born 1951 - Germany
- Robert Cotton, Born 1951 - England
- Ted Abbott, Born 1950 - CA, USA
- Marek Babik, Born 1950 - Poland
- Brian Miller, Born 1950 - NY, USA
- Fernando Gines Ortega, Born 1948 - Spain
- Len Janicki, Born 1948 - NV, USA
- Jerry Hamblen, Born 1943 - FL, USA
- Mal Kelly, Born 1942 - Australia
- Hiliary Walklett, Born 1940 - England
- Roger Stoufer, Born 1939 - MN, USA
- John Ireland, Born 1939 - England
- Alistair Fyfe, Born 1937 - Australia
- Don Merriam, Born 1937 - Canada
- David Atkinson Sr. Born 1936 - NC, USA
- Vern Quimby, Born 1933 - CA, USA
- Charles Rannells, Born 1927 - WV, USA
From a Family and Friends Point-of-View: