Kennedy's Disease Association

A Public Benefit, Non-Profit Organization

"I am glad to finally see information being made available about this disease.. THANKS for the website"

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The KDA's mission is to inform, support, educate, fund research, and find a cure for Kennedy's Disease 

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Kennedy’s Disease (spinal and bulbar muscular atrophy) is an adult-onset “X” linked inherited disease with symptoms usually beginning to appear between the ages of 30 and 50.

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The Kennedy’s Disease Association has worked to educate others about this lesser-known disease and to support clinical research efforts.

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It takes an enormous amount of money to fund research…more than any of us can afford alone, but together, we are capable of great accomplishments.

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It is passed on from generation to generation in families worldwide. Males generally inherit the disease symptoms and females are the carriers.

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Kennedy's Disease Brochures

The Kennedy's Disease Association has developed a comprehensive easy to read brochure on Kennedy's Disease.  The brochure explains what is Reach-for-stars2Kennedy's Disease, how it is contracted, how to join the KDA and much more.  Many people have found this guide helpful and have given a copy to their doctor.

You can print the PDF brochure by clicking on the links below, or, you can use the Contact Us form to request that we mail you some brochures.

 

KDA BrochureClick-here

 

Mailers Were Sent To Neurologists

In the spring of 2005, over 10,000 neurologists received a cover letter and brochures from the KDA that included the following:

  • An explanation of Kennedy's Disease
  • How Kennedy's Disease is contracted
  • A list of symptoms that may be useful in diagnosing Kennedy's Disease
  • The possibility of a misdiagnosis of ALS unless a DNA test is given to the patient
  • What is the Kennedy's Disease Association?

Inform Others

The information is for your use.  You may copy, paste, print or email these pages to your friends, family, coworkers or anyone else you would like to inform about Kennedy's Disease (Spinal Bulbar Muscular Atrophy) and the KDA.  (Brochures, Educative Materials, Letters, etc. will be added over time.)

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