"Volunteers do not necessarily have the time; they just have the heart."

(Elizabeth Andrew)

ThankYou

Consider sponsoring an event

Our thanks goes out to all of you who are helping us find a cure for Kennedy's Disease

Past Fund Raising Events

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Rare Disease Day Bay Area

Ralph Briones and his family raised over $29,000 for the KDA. A-MA-ZING!  His original goal was $5000 over a weekend which was surpassed on day one.  It was a pleasure to watch the Rare Disease Day - Bay Area event unfold.  The dance, the cooking, the food demos, all so great. 


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Dim Sum Give Some

Chef Dan Jacobs has held Dim Sum Give Some fund raising events in Wisconsin and raised over $85,000 to help the KDA find a cure for Kennedy's Disease 

 


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  • Queen Anne's Race

  • Won't you please support this worthy fundraising cause?  Click HERE to go to the Facebook Page.

  • The first Queen Anne's Race was held in the spring of 2013. It was a great success.  The event raised over $13,000Read More

 


EdMontie5kEd Montie 5K  Race

The Montie family has raised over $59,000 to help the KDA find a cure. 

 


 

Golf Tournaments

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Texas Golf Tournament

The Texas team has raised over $127,000 in four years!

  • The first Kennedy's Disease Golf Tournament was held in October, 2011 at the Jersey Meadow Club, Houston, TX.The event raised $16,000.  The core committee consisted of Murray Williams, Ed and Nancy Noack, Louise and Charley Goforth, Verna and Mike Hoke and Krissy McLaren.  Read More

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New York Golf Scramble

  • The first annual Kennedy's Disease CNY Golf Scramble was held in August at the Beaver Meadows Golf Club, Phoenix, NY. The event raised $8,000.  Read More

 The KDA sincerely thanks the golf tournament fund raising teams


 Others who are racing to help find a cure!

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Tom Goynes and Sandy Goynes - "Paddling for Kennedy's Disease"

Tom Goynes and his daughter, Sandy Goynes, are experienced Texas Water Safari veterans and  paddled this 260-mile long river adventure for Kennedy's Disease

 

 

 

Ed Meyertholen has ran in
several marathons including the Boston Marathon. 
Beth DuVall has run three half-marathons.  Sean Blasko has participated in several triathlons. 
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Devon Perry has ridden
her bike in several races to help the KDA.

Dave Heraper ran a race  to promote awareness and funding for the KDA.

Tara & Erin Mills - Running Erin's 1st Mini-Triathlon.


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