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PRODID:-//kennedysdisease.org//NONSGML kigkonsult.se iCalcreator 2.30.10//
CALSCALE:GREGORIAN
METHOD:PUBLISH
UID:b2ecd745-38e1-48b8-bb43-c03443f01af6
X-WR-CALDESC:1. Jameson Parker provided an update on the KDA-sponsored rese
 arch workshop held at Banbury on  September 10 & 11\, noting that it was a
  great investment for the KDA and that the participants are preparing a pa
 per summarizing key points and next steps for KD research.\n2. Discussed t
 he fall fundraising campaign and made refinements to the letter that will 
 go out to potential donors.\n3. Reviewed the process for handling emails r
 eceived from info@KDA and will follow up with ideas for making it more eff
 icient.  \n4. Discussed the 2023 KDA grants and fellowships program but de
 ferred decisions on approvals until next month when the SRB has completed 
 its review process.\n5. Received a briefing comparing two different donor 
 management systems in preparation for making a change in 2024 to expand ou
 r donor base\, engage corporations and foundations\, track donors/donation
 s more efficiently\, and generally improve our fundraising process.\n6. Di
 scussed the results of the genetic knowledge survey and identified topics 
 that should be included in our education initiatives\, e.g.\, conference p
 resentations on the inheritance pattern of the KD genetic mutation and ses
 sions directed specifically toward the men’s and carriers’ groups.\n7. Dis
 cussed problems that have arisen recently with attempts to solicit birthda
 y donations via Facebook and determined that the best remedy is for users 
 to direct donations to the KDA by providing a direct link to the donation 
 page as part of their FB post.
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X-WR-TIMEZONE:America/New_York
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TZID:America/New_York
BEGIN:STANDARD
TZNAME:EST
DTSTART:20221106T020000
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
RDATE:20231105T020000
RDATE:20241103T020000
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TZNAME:EDT
DTSTART:20230312T020000
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
RDATE:20240310T020000
RDATE:20250309T020000
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BEGIN:VEVENT
UID:e7298865-2e19-4c44-8434-2b9ec2216333
DTSTAMP:20260601T183650Z
DESCRIPTION:1. Jameson Parker provided an update on the KDA-sponsored resea
 rch workshop held at Banbury on  September 10 & 11\, noting that it was a 
 great investment for the KDA and that the participants are preparing a pap
 er summarizing key points and next steps for KD research.\n2. Discussed th
 e fall fundraising campaign and made refinements to the letter that will g
 o out to potential donors.\n3. Reviewed the process for handling emails re
 ceived from info@KDA and will follow up with ideas for making it more effi
 cient.  \n4. Discussed the 2023 KDA grants and fellowships program but def
 erred decisions on approvals until next month when the SRB has completed i
 ts review process.\n5. Received a briefing comparing two different donor m
 anagement systems in preparation for making a change in 2024 to expand our
  donor base\, engage corporations and foundations\, track donors/donations
  more efficiently\, and generally improve our fundraising process.\n6. Dis
 cussed the results of the genetic knowledge survey and identified topics t
 hat should be included in our education initiatives\, e.g.\, conference pr
 esentations on the inheritance pattern of the KD genetic mutation and sess
 ions directed specifically toward the men’s and carriers’ groups.\n7. Disc
 ussed problems that have arisen recently with attempts to solicit birthday
  donations via Facebook and determined that the best remedy is for users t
 o direct donations to the KDA by providing a direct link to the donation p
 age as part of their FB post.
DTSTART;TZID=America/New_York:20230921T200000
DTEND;TZID=America/New_York:20230921T220000
LOCATION:
SUMMARY:KDA Board Meeting
END:VEVENT
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