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METHOD:PUBLISH
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X-WR-CALDESC:Meeting Highlights:\n\n1. We’ve had a great response to the Ja
 panese Genetic Knowledge Survey from both KD men and carriers.\n- A page w
 ill be built on the KDA website for posting and printing the one-page info
 rmation documents on KD.\n- The MDA has invited two SBMA clinicians\, Chri
 s Grunseich (NIH) and Tahseen Mozaffar (UC Irvine)\, to be part of their 2
 024 MedEd seminar. \n2. Continued the discussion of increased interaction 
 with the MDA and coordination with them to have SBMA genetic testing offer
 ed at their clinics. \n3. Decided to implement a fall fundraising campaign
  to address a recent increase in funding requests from the research commun
 ity. \n4. Discussed a proposal to include periodic profiles of Board membe
 rs in the KDA Newsletter and decided to broaden it to include researchers 
 and KDA members. \n5. Decided to add an additional member to the KDA Board
  while continuing the discussion of the composition of the Board. \n
X-WR-RELCALID:2c4bca7cb62c9c34b58fe2bfbb3cfa30
X-WR-TIMEZONE:America/New_York
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:STANDARD
TZNAME:EST
DTSTART:20221106T020000
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
RDATE:20231105T020000
RDATE:20241103T020000
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BEGIN:DAYLIGHT
TZNAME:EDT
DTSTART:20230312T020000
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
RDATE:20240310T020000
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BEGIN:VEVENT
UID:d6733bd9-7ece-4265-9845-5cb02c0ba301
DTSTAMP:20260601T192926Z
DESCRIPTION:Meeting Highlights:\n\n1. We’ve had a great response to the Jap
 anese Genetic Knowledge Survey from both KD men and carriers.\n- A page wi
 ll be built on the KDA website for posting and printing the one-page infor
 mation documents on KD.\n- The MDA has invited two SBMA clinicians\, Chris
  Grunseich (NIH) and Tahseen Mozaffar (UC Irvine)\, to be part of their 20
 24 MedEd seminar. \n2. Continued the discussion of increased interaction w
 ith the MDA and coordination with them to have SBMA genetic testing offere
 d at their clinics. \n3. Decided to implement a fall fundraising campaign 
 to address a recent increase in funding requests from the research communi
 ty. \n4. Discussed a proposal to include periodic profiles of Board member
 s in the KDA Newsletter and decided to broaden it to include researchers a
 nd KDA members. \n5. Decided to add an additional member to the KDA Board 
 while continuing the discussion of the composition of the Board. \n
DTSTART;TZID=America/New_York:20230810T200000
DTEND;TZID=America/New_York:20230810T220000
LOCATION:
SUMMARY:KDA Board Meeting
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