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X-WR-CALDESC:KDA President’s Updates:\nProceeds from the 2023 Texas Golf Sc
 ramble will be used to fund the KDA’s 2023 SBMA Research Workshop at the B
 anbury Center in NY.\nThe KDA website now includes information on NIDO-361
 \, the drug developed by Nido Biosciences to treat KD that is nearing clin
 ical trial stage. In addition there is now a link to the MDA page that pro
 vides a clear description of the phases of clinical trials.  \nThere is a 
 tentative agreement with the MDA to share the French protocol for treating
  KD with its adult care centers.\nMet with past KDA presidents who agreed 
 to act as an informal advisory committee on fundraising. \nBoard was brief
 ed on how its financial contribution to the 2023 Global KD Conference in L
 ondon will be used.\nDiscussed in depth the composition and operation of t
 he KDA Board. \nDiscussed the need for volunteers and decided to put a not
 ice on the KDA website on where/how to sign up to volunteer.   \n\n
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DTSTART:20221106T020000
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RDATE:20231105T020000
RDATE:20241103T020000
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DTSTART:20230312T020000
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RDATE:20240310T020000
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BEGIN:VEVENT
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DTSTAMP:20260601T212917Z
DESCRIPTION:KDA President’s Updates:\nProceeds from the 2023 Texas Golf Scr
 amble will be used to fund the KDA’s 2023 SBMA Research Workshop at the Ba
 nbury Center in NY.\nThe KDA website now includes information on NIDO-361\
 , the drug developed by Nido Biosciences to treat KD that is nearing clini
 cal trial stage. In addition there is now a link to the MDA page that prov
 ides a clear description of the phases of clinical trials.  \nThere is a t
 entative agreement with the MDA to share the French protocol for treating 
 KD with its adult care centers.\nMet with past KDA presidents who agreed t
 o act as an informal advisory committee on fundraising. \nBoard was briefe
 d on how its financial contribution to the 2023 Global KD Conference in Lo
 ndon will be used.\nDiscussed in depth the composition and operation of th
 e KDA Board. \nDiscussed the need for volunteers and decided to put a noti
 ce on the KDA website on where/how to sign up to volunteer.   \n\n
DTSTART;TZID=America/New_York:20230608T200000
DTEND;TZID=America/New_York:20230608T220000
LOCATION:
SUMMARY:KDA Board Meeting
END:VEVENT
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